Healthcare Providers' Experiences with Autism: A Scoping Review.
Healthcare staff keep saying they feel lost with autistic patients—multiple reviews spanning ten years agree that targeted training and system supports are still missing.
01Research in Context
What this study did
Morris et al. (2019) searched 27 studies that asked doctors, nurses, and therapists one question: what is it like to treat an autistic patient?
They read interviews, surveys, and focus-group transcripts from around the world. No lab work, no new data—just a map of what providers already told us.
What they found
Providers kept saying the same four pain points. Their job feels too complex, they lack autism know-how, talking with patients is hard, and the system gives little help.
The review shows a clear gap: good intentions meet poor preparation.
How this fits with other research
Bruder et al. (2012) saw the same training gap seven years earlier. Their survey of 346 primary-care doctors already warned that physicians felt under-qualified. Rae widens the lens to all healthcare workers and confirms the problem never went away.
Jubenville-Wood et al. (2024) and Øverland et al. (2025) zoom in on mental-health clinicians. These newer qualitative studies move beyond "we feel lost" to "here is what actually helps." Together they extend Rae’s barrier list into a starter kit of fixes: adjust communication style, respect autonomy, and share clear session agendas.
Edwards et al. (2026) flips the camera. Their scoping review asked autistic healthcare students—not providers—how placements feel. Students cite sensory overload and disclosure dilemmas. The two reviews sit side-by-side: providers say "we need training," students say "we need accommodations." The gap is two-way, not one-way.
Why it matters
If you supervise RBTs in medical clinics, use these papers as a package. Start with the Rae list to build an autism-specific in-service that covers role clarity, communication tips, and system supports. Then borrow the concrete strategies from Theresa and Elisabeth to role-play adjusted eye contact, literal language, and sensory-friendly waiting areas. Finally, add the Emilie lens: invite autistic clients or students to co-teach the session so staff hear the other side of the story. One lunchtime training can hit both voices and shrink the double-sided gap.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Schedule a 30-minute brown-bag with clinic staff: present the four top barriers from Rae and practice one communication fix from Theresa.
02At a glance
03Original abstract
Gaps in research knowledge exist regarding patient-provider interactions with individuals with autism in healthcare settings. To address this, a scoping review was conducted focusing on the experiences of healthcare professionals working with individuals with autism. A systematic search and screen of the literature resulted in 27 relevant studies. Six key themes were found across these 27 studies including (1) complexity beyond usual role, (2) limited knowledge and resources, (3) training/prior experience, (4) communication and collaboration, (5) need for information and training, and (6) need for care coordination and systemic changes. The results of this review have implications for future research and practice and should be considered when reflecting on opportunities to enhance research and service provision with individuals with autism.
Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-019-03912-6