Factors influencing waiting times for diagnosis of Autism Spectrum Disorder in children and adults.
Gather all forms and records before the first visit for kids, and reserve extra appointment slots for high-risk adults to keep waits short.
01Research in Context
What this study did
McKenzie et al. (2015) looked at why some families wait longer than others for an autism diagnosis.
They studied both kids and adults. They counted how much information arrived before the assessment and how many contacts happened after the referral.
The team wanted to see which factors speed up or slow down the process.
What they found
More paperwork before the first visit shortens the road to a child’s diagnosis.
High-risk adults get seen sooner, but they need extra appointments, so the total time still grows.
In short: front-load the forms for kids, and budget extra steps for complex adults.
How this fits with other research
Bradford et al. (2018) show the same idea in action. They tucked a two-visit autism triage into regular pediatric offices and cut the median wait to 55 days. Karen’s paper says gather info early; F’s paper proves it works when you do.
Sicherman et al. (2021) add a parent twist. When parents avoid reading materials, diagnosis drags. When they speak up and no one answers, it drags even more. Karen points to information volume; Nachum shows who must read and respond.
Capio et al. (2013) keep kids on schedule with routine well-child visits and gain a 1.6-month head start. All three studies line up: move information, move faster.
Why it matters
You can trim months off a family’s wait. Send parent packets before the first appointment. Ask pediatricians to slip a short autism screener into regular check-ups. When an adult referral looks complex, block two or three follow-up slots on day one. Small front-end moves give families answers sooner and start services earlier.
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02At a glance
03Original abstract
AIMS: To identify the main factors predicting delays in diagnosis for Autism Spectrum Disorder (ASD) at three stages in the diagnostic process: wait for first appointment; assessment duration, and total wait for diagnosis. METHOD: Data were gathered from 150 case notes (80 child and 70 adult cases) from 16 diagnosing services across Scotland. RESULTS: Having more information pre-assessment was associated with a reduced duration of the diagnostic process for children. This relationship was partially mediated by a reduction in the number of contacts required for diagnosis. In adults, having more factors associated with ASD (increased risk) reduced the wait time from referral to first appointment, but increased the overall duration of the diagnostic process. The latter relationship was partially mediated by an increase in the number of contacts required for diagnosis. CONCLUSION: Within children's services, increasing the amount of relevant information available pre-assessment is likely to reduce total duration of the assessment process by reducing number of contacts required. Having a high risk of ASD as an adult appears to result in being seen more quickly following referral, but also to increase the number of contacts needed and assessment duration. As a result, it increases and total duration overall.
Research in developmental disabilities, 2015 · doi:10.1016/j.ridd.2015.07.033