Service Delivery

Factors influencing the expectations of parents for their mentally retarded children.

Narayan et al. (1993) · Journal of intellectual disability research : JIDR 1993
★ The Verdict

Parents who have older kids and longer service histories set higher goals—meet them there, not at the entry level.

✓ Read this if BCBAs writing IFSPs or IEPs with families of children with ID.
✗ Skip if Clinicians working only with acute medical cases or adults with late-onset disability.

01Research in Context

01

What this study did

The team asked 100 parents of kids with intellectual disability what they expected for their child’s future.

They used a short survey. Parents rated items like school, jobs, and daily living skills.

The study looked at which child or family facts best predicted higher or lower scores.

02

What they found

Two things stood out: child age and how long the family had used services.

Older kids and families in services longer had parents who expected more, not less.

Child IQ and severity of disability were weaker predictors.

03

How this fits with other research

McCarron et al. (2022) later showed that gentle, low-burden contact keeps a large share of adults with ID in a study for 11 years. Their work extends the 1993 finding: when services stay close and respectful, families stay involved and expectations can keep rising.

Klatte et al. (2025) asked Dutch speech therapists why they struggle to team up with parents. That paper sits downstream from the 1993 survey; once we know parents aim high, we still need to train staff to listen and plan together.

Prasher et al. (1995) surveyed staff beliefs about challenging behavior. Like the parent study, experience shaped views: veteran staff saw needs, not just functions. Both papers warn us that ‘time in the system’ changes minds, so check assumptions on both sides.

04

Why it matters

Before you write goals, ask parents how long they’ve been in your program. If they are new, start small and build wins. If they are veterans, pitch bigger targets—they already believe more is possible. Use Mary et al.’s stay-close tactics (short calls, flexible visits) to keep them engaged, and borrow Inge et al.’s fix: train yourself to share the pen during planning so expectations turn into shared action plans.

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02At a glance

Intervention
not applicable
Design
survey
Sample size
100
Population
intellectual disability
Finding
not reported

03Original abstract

In terms of treatment for cure, education, training and general information, parental expectations for their mentally retarded children are influenced by various factors such as the age and sex of the retarded child, the level of mental retardation, the education and occupation of the parents, and the socio-economic status and area of living. In the present study, an attempt has been made to find out the correlation of six variables namely, age, sex, literacy, locality of living, level of retardation and duration of follow-up on the expectation of one hundred parents of mentally retarded children who attend the home-based services at the National Institute for the Mentally Handicapped, Secunderabad, India. The intercorrelation among the six independent variables and the dependent variable revealed that age of the child and duration of follow-up have a high correlation (P < 0.01), and literacy of the parents and duration of follow-up were positively correlated (P < 0.05 level). It was also found that age and duration of follow-up have a positive correlation. Further detailed multiple regression analysis was conducted and the results are discussed.

Journal of intellectual disability research : JIDR, 1993 · doi:10.1111/j.1365-2788.1993.tb00583.x