Service Delivery

Emergency service experiences of adults with autism spectrum disorder without intellectual disability.

Tint et al. (2019) · Autism : the international journal of research and practice 2019
★ The Verdict

Autistic adults without ID frequently use the ER and dislike the care they get.

✓ Read this if BCBAs who support autistic teens or adults in the community.
✗ Skip if Clinicians who only serve young children with no medical crises.

01Research in Context

01

What this study did

Tint et al. (2019) asked 40 autistic adults without intellectual disability about their run-ins with emergency services.

Each person filled out a short survey covering the last 12–18 months. They noted how many times they visited an emergency room or spoke with police and how they felt about each encounter.

02

What they found

Almost half had gone to the ER, and one third had police contact in that short window.

The group rated ER care poorly, but they viewed police interactions more favorably.

03

How this fits with other research

Boudreau et al. (2015) mined 2010 national data and showed that autistic teens and adults land in the ER for different reasons by age. Ami’s 2019 survey picks up where that chart left off—adding the patient’s voice and the news that adults are unhappy once they arrive.

Garrick et al. (2022) ran a near-copy survey with Australian parents of autistic kids. Both studies find the same theme: emergency staff miss autism-specific needs, and families leave stressed.

Ghanouni et al. (2021) widened the lens to all healthcare, interviewing autistic adults about every clinic visit. Their picture of system-wide barriers supports Ami’s ER-specific gripe—poor autism knowledge is everywhere, not just the hospital hallway.

04

Why it matters

If you write behavior plans or safety protocols, expect your adult clients to hit the ER. Coach them to carry a brief autism factsheet for staff. Push local hospitals to add the free training tools that McGonigle et al. (2014) already built. One page and one email from you could turn the next crisis visit into a calmer, shorter stay.

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Help your client make a wallet card that tells ER staff how they communicate best.

02At a glance

Intervention
not applicable
Design
survey
Sample size
40
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This study aimed to describe patterns of emergency department use and police interactions, as well as satisfaction with emergency services of 40 adults with autism spectrum disorder without intellectual disability over 12-18 months. Approximately 42.5% of the sample reported visiting the emergency department and 32.5% reported interactions with police during the study period. Presenting concerns for emergency department use and police interactions varied widely, highlighting the heterogeneous needs of this population. On average, participants reported being dissatisfied with care received in the emergency department while police interactions were rated relatively more favourably.

Autism : the international journal of research and practice, 2019 · doi:10.1177/1362361318760294