Defining the needs of patients with intellectual disabilities in the high security psychiatric hospitals in England.
One-third of high-security patients with ID could move out today if community services matched their complex needs.
01Research in Context
What this study did
Thomas et al. (2004) asked staff to rate every patient with intellectual disability in England's three high-security hospitals. They used a 25-item checklist to count met and unmet needs. The team wanted to know how many people could move to less secure care if the right services existed.
What they found
Each patient had about 11 needs on average. One in three of those needs were not being met. The big news: one-third of the patients could step down today if community services matched their needs.
In plain words, the hospitals are holding people who no longer need maximum security.
How this fits with other research
Edwards et al. (2007) extends the same story. They surveyed Assessment and Treatment Units and found the same trap: 25% of residents stay over two years and only 40% have a discharge plan. Together the two papers show inappropriate long-stay is common across high, medium, and low-security settings.
McKenzie (2011) pulls the lens back. Her review says specialist congregate services often use restrictive practices with little evidence of benefit. This supports D et al.'s call to move people out.
Gustafsson (1997) sounds like a contradiction at first. That Swedish study found people with ID were admitted to psychiatric units less often than the general public. But the gap is about access, not need. D et al. show that when services do exist, they can be the wrong level—too secure and hard to leave.
Why it matters
If you write discharge plans, fight for step-down beds, or sit on funding panels, this paper gives you numbers. One in three high-security patients with ID could leave tomorrow if we built the right community supports. Use the 25-item needs list to document exactly what those supports must include. Start the conversation earlier so people don't get stuck in the first place.
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02At a glance
03Original abstract
BACKGROUND: Previous studies have suggested that a substantial proportion of the patients with intellectual disabilities (ID) in the high security psychiatric hospitals (HSPHs) should be transferred to more appropriate services to cater for their specific needs in the longer term. METHOD: The individual and placement needs of high secure psychiatric patients detained under the legal category of mental impairment or severe mental impairment were assessed in a cross-sectional survey. RESULTS: Patients had a large number of needs (on average 10.8), about a third of which were rated as unmet and therefore represented significant continuing problems. Approximately one-third of the sample could be moved out of HSPHs if appropriate alternatives were available. Factors associated with the continued need for high security included higher treatment and security needs, younger age, recent violent conduct and their index offence profile. CONCLUSIONS: High security services are still required for a number of patients with ID. New and existing services need to be configured to meet specific profiles of need and provide long-term rehabilitation and specialist care. DECLARATION OF INTEREST: This was part of a larger project funded by grants from the High Security Psychiatric Services Commissioning Board and Department of Health.
Journal of intellectual disability research : JIDR, 2004 · doi:10.1111/j.1365-2788.2004.00629.x