Daily living skills in adolescents with autism spectrum disorder: Implications for intervention and independence.
Child behavior issues plus money stress forecast ten-year depression in moms—so screen and support caregiver mental health at every plan meeting.
01Research in Context
What this study did
Kuenzel et al. (2021) followed the mothers of children with autism or intellectual disability. Kids were age 3 when the study began and age 13 at the last check.
Each year the moms filled out forms about child behavior problems, family money strain, and their own mood. The team used a growth model to see which early signs predicted later depression.
What they found
Mothers reported more depression when their child had lots of behavior problems. Money stress also raised depression scores.
These two risks together predicted both the starting level of depression and how fast it worsened over ten years.
How this fits with other research
Whaling et al. (2025) extends this picture to fathers. They tracked dads for ten years and found high conflict with the co-parent lingered just as long. Together the papers say: screen both parents, not just moms.
Siklos et al. (2006) came first. That survey showed autism parents mainly lack respite and expert info. Kuenzel et al. (2021) now explains why filling those gaps matters: without help, behavior and money stress drag moms into depression.
Choi et al. (2012) looked like a contradiction at first. Their big data set found autism does not raise divorce risk, while Elizabeth links child problems to mom depression—often thought to hurt marriages. The difference is focus: H et al. counted legal divorce papers; Elizabeth counted mood. A couple can stay married yet still feel high strain.
Why it matters
You already track aggression and self-injury. Add two quick items to your intake: a short money-strain question and a mood screen for the caregiver. If either score is high, link the family to respite grants, behavior respite, or mental-health counseling. Ten minutes of screening can steer families to supports that slow a decade-long slide.
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Join Free →Add two questions to your caregiver interview: 'How hard is it to pay for basic needs?' and 'How often have you felt down last month?' If either answer worries you, pause the session and call your social worker or give the family a respite voucher form.
02At a glance
03Original abstract
This study identified trajectories of depressive symptoms among mothers of children with or without intellectual disability longitudinally across eight time points. Results of fitting a linear growth model to the data from child ages 3-9 indicated that child behavior problems, negative financial impact, and low dispositional optimism all significantly related to initial maternal depressive symptoms. Child behavior problems were significantly associated with changes in depressive symptoms over time, relating above and beyond child disability status. When looking from late childhood into early adolescence, hierarchical linear regression analysis revealed that maternal depressive symptoms at child age 9 and perceived financial impact significantly related to maternal depressive symptoms at child age 13. Implications for practice and future research directions are discussed.
Research in autism spectrum disorders, 2021 · doi:10.1352/1944-7558-122.5.374