Service Delivery

COVID-19 and the Field of Intellectual and Developmental Disabilities: Where Have We Been? Where Are We? Where Do We Go?

Thompson et al. (2020) · Intellectual and developmental disabilities 2020
★ The Verdict

COVID-19 proved IDD services can bend without breaking—lock the flexible tools into policy before the window closes.

✓ Read this if BCBAs who write or influence IDD service policy at state, county, or agency level.
✗ Skip if Clinicians looking for single-client intervention data; this is a big-picture policy piece.

01Research in Context

01

What this study did

Patton et al. (2020) wrote a narrative review. They looked at how COVID-19 hit services for people with intellectual and developmental disabilities. The paper asks three questions: Where have we been? Where are we? Where do we go?

02

What they found

The authors list policy fixes that should outlast the pandemic. Top items: keep telehealth, let staff work flexible shifts, and write emergency plans that fit IDD clients. No numbers are given; the piece is a call to action, not an experiment.

03

How this fits with other research

Rosencrans et al. (2021) give real data that back the call. They tracked unplanned online support contacts for adults with IDD during lockdown. Contacts surged and staff handled them well—proof that telehealth can carry a crisis load.

Cruz-Montecinos et al. (2024) go one step further. They ran virtual town-hall meetings with youth, families, and providers. The online talks produced fresh, local ideas for better transition services. Together the three papers form a timeline: ask for telehealth in 2020, prove it works in 2021, and show creative uses in 2024.

Bradley (2020) looks like a twin but is not. Both papers came out the same year, both push flexible, tech-enabled care. The match gives extra weight to the message: the field spoke in one voice right when COVID hit.

04

Why it matters

You can treat the pandemic as a free pilot study. If your agency still limits telehealth, show these papers to decision-makers. Point to Rosencrans et al. (2021) for evidence that remote support holds up under stress. Use Cruz-Montecinos et al. (2024) as a model—host a one-hour online focus group with families and jot down new transition ideas. Lock the changes into policy now while memories of lockdown are fresh.

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Schedule a 30-minute virtual focus group with three families and ask what remote supports they still want; write their answers into next quarter’s service plan.

02At a glance

Intervention
not applicable
Design
narrative review
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

The coronavirus (COVID-19) pandemic has affected, and will continue to affect, every aspect of the intellectual and developmental disabilities (IDD) community. We provide recommendations to (a) support people with IDD and the broader of field of IDD during the course of the pandemic, and (b) place the IDD community in a strong position when the health threats associated with the pandemic abate and post-pandemic social and policy structures are formed.

Intellectual and developmental disabilities, 2020 · doi:10.1352/1934-9556-58.4.257