Service Delivery

"Chasing hope": Parents' perspectives on complementary and alternative interventions for children with autism in Kazakhstan.

An et al. (2020) · Autism : the international journal of research and practice 2020
★ The Verdict

Kazakh parents hunt for camel milk and energy healers because qualified ABA is almost nonexistent.

✓ Read this if BCBAs who serve rural areas, tele-health clients, or families in low-resource countries.
✗ Skip if Clinicians with long wait-lists in well-funded cities who already have local ABA teams.

01Research in Context

01

What this study did

An et al. (2020) talked with Kazakh parents about why they try herbs, special diets, or energy healing for their autistic children.

They asked open questions and grouped answers into themes. No tests, no numbers—just stories.

02

What they found

Parents said real ABA is almost impossible to find. They grab anything that offers hope.

One mom rode trains for days to reach the nearest child psychologist. When that failed, she turned to camel-milk cures.

03

How this fits with other research

Zakirova-Engstrand et al. (2024) counted only eleven autism studies across five Central-Asian countries. Sofiya’s paper is one of those eleven, showing how tiny the evidence base is.

Wilson et al. (2021) asked Australian parents the same questions. Even where services exist, parents still weigh travel time, cost, and child fit. The barrier shifts from “nowhere to go” to “hard to reach,” but the decision process is the same.

Wang et al. (2026) looked at multiple poor regions and added a new layer: cultural myths delay diagnosis. Together the three studies trace a path—scarcity, then myths, then daily logistics—each blocking families at different points.

04

Why it matters

If you consult abroad or supervise remote cases, expect parents to already have tried non-ABA options. Start by asking what they have used and why. Map local barriers—distance, cost, language—then build a plan that fits those limits. Offer tele-supervision or train local aides so parents do not have to “chase hope” alone.

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Ask your remote families to list every non-ABA treatment they have tried, then co-write a realistic plan that uses what is actually available to them.

02At a glance

Intervention
not applicable
Design
qualitative
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The article reports the findings of a qualitative research study on how and why parents of autistic children in Kazakhstan utilize complementary and alternative medicine. We found that parents turn to complementary and alternative medicine because of the lack of professional care options available to them and in pursuit for hope and opportunities for their children with ASD.

Autism : the international journal of research and practice, 2020 · doi:10.1177/1362361320923494