Service Delivery

Characteristics of international websites with information on developmental disabilities.

Reichow et al. (2014) · Research in developmental disabilities 2014
★ The Verdict

Google gives different disability information in every country, so clinicians must hand families trusted URLs before they leave.

✓ Read this if BCBAs who coach families to find extra resources online.
✗ Skip if Clinicians whose clients have no internet access or already use a shared medical portal.

01Research in Context

01

What this study did

The team typed six common disability terms into Google in six English-speaking countries.

They opened the first 10 links for each search and compared what the pages said.

Terms were autism, ADHD, Down syndrome, intellectual disability, and developmental delay.

Countries were the US, UK, Ireland, Canada, Australia, and New Zealand.

02

What they found

The same search gave different top pages in each country.

Some links used old words like "mental retardation." Others used person-first language.

No country had the same list of top sites, and quality varied widely.

03

How this fits with other research

Johnson et al. (2009) built one shared EU research database so every country sees the same Prader-Willi data. Brian et al. found the opposite: families who simply Google a condition get different answers depending on where they live.

Luecking (2011) showed that personal contact with employers helps adults with ID find work. Brian et al. warn that families who only use the web may never reach those good local services.

Lincoln et al. (1988) checked real workplaces and found boss expectations differ from what really happens. Brian et al. did the same check for websites and found the same mismatch: what Google shows is not always what families need.

04

Why it matters

When parents leave your office and search "autism treatment," the first page they see may be outdated, wrong, or not available in your area. Spend two minutes writing down two or three vetted URLs that use the same terms you just used in session. This small step keeps everyone on the same page and stops Dr. Google from undoing your good work.

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Add a short "safe search card" to every discharge packet with three up-to-date, local, person-first websites you reviewed yourself.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder, adhd, down syndrome, intellectual disability, developmental delay
Finding
not reported

03Original abstract

The Internet often serves as a primary resource for individuals seeking health-related information, and a large and growing number of websites contain information related to developmental disabilities. This paper presents the results of an international evaluation of the characteristics and content of the top 10 ranked results (i.e., not including sponsored results - pay-per-click) returned when one of five terms related to developmental disabilities (i.e., ADHD, autism, down syndrome, learning disability, intellectual disability) was entered into one of six country specific Google online search engines (i.e., Australia (https://www.google.com.au), Canada (https://www.google.ca), Ireland (https://www.google.ie), New Zealand (https://www.google.co.nz), the United Kingdom (https://www.google.co.uk), and the United States (https://www.google.com)) on October 22, 2013. Collectively, we found that international consumers of websites related to developmental disabilities will encounter different websites with differing content and terminology, and should be critical consumers to ensure they locate the information they are seeking.

Research in developmental disabilities, 2014 · doi:10.1016/j.ridd.2014.05.028