Service Delivery

Characteristics and experiences of children and young people with severe intellectual disabilities and challenging behaviour attending 52-week residential special schools.

Pilling et al. (2007) · Journal of intellectual disability research : JIDR 2007
★ The Verdict

Teens who land in 52-week residential schools are almost always non-verbal boys with severe ID, autism, and dangerous behaviour that local teams could not manage.

✓ Read this if BCBAs working with adolescents who have severe ID and autism in any setting.
✗ Skip if Clinicians serving only mild or moderate ID, or preschool caseloads.

01Research in Context

01

What this study did

Edwards et al. (2007) visited every 52-week residential school in England and Wales. They asked staff to fill out forms on every pupil.

The survey captured age, sex, diagnosis, speech level, and types of serious challenging behaviour. In total, 156 teens were described.

02

What they found

Almost all pupils were boys in their mid-teens. Most had severe intellectual disability plus autism and fewer than 30 spoken words.

Serious challenging behaviour was the rule, not the exception. Local schools and respite services had already tried and failed to cope.

03

How this fits with other research

Reid et al. (2005) followed a whole county cohort for 12 years. They showed that early severe behaviour plus poor language usually lasts. The 2007 census now shows where those persistent cases end up: residential schools.

Richardson et al. (2008) tracked adults with similar profiles for 11 years. Serious behaviour often stayed the same, hinting that the teens in N et al. may need lifelong intensive support.

Bailey et al. (2010) add another layer: ID teens with chronic diseases show 4–8 times more emotional and behavioural problems. Residential placements may therefore be treating a medical-behavioural double load.

04

Why it matters

If you assess or treat teens with severe ID and autism, expect a high chance of minimal speech plus dangerous behaviour. These are the pupils who burn out local services. Plan early for intensive, round-the-clock programming and medical coordination. When you write behaviour plans, assume long timelines and build in robust caregiver training so future placements do not fail.

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Add a brief sleep and hearing screen to your intake—undiagnosed issues may fuel the behaviour you see.

02At a glance

Intervention
not applicable
Design
survey
Sample size
156
Population
intellectual disability, autism spectrum disorder
Finding
not reported

03Original abstract

BACKGROUND: This study sought to gather information about the characteristics and experiences of children and young people with severe intellectual disabilities and severe challenging behaviour attending 52-week residential special schools. METHOD: Staff of nine schools completed postal questionnaires on the characteristics and experiences of 156 pupils. RESULTS: Those attending residential schools are predominantly male, teenagers and in long-term placements. Most have limited communication skills and autistic spectrum disorders. All display high numbers of challenging behaviours, many of them serious. Children have a greater range and complexity of needs than pupils at day severe learning difficulties (SLD) schools, albeit with some overlap. CONCLUSIONS: Children at 52-week residential schools present needs that both families and local services struggle to meet. Residential placement may provide the intensity of educational input and social support that is required, but may increase the vulnerability of the children. Local alternatives to residential schools should be investigated.

Journal of intellectual disability research : JIDR, 2007 · doi:10.1111/j.1365-2788.2006.00852.x