Caregiver involvement in applied behavior‐analytic research: A scoping review and discussion
Almost every pediatric ABA study includes caregivers, but we rarely let them collect data—so start adding that job to your next protocol.
01Research in Context
What this study did
Becraft and team read 228 ABA studies that worked with caregivers. They asked: how are moms, dads, and other helpers being used? They sorted each paper into passive roles (just signing forms) or active roles (running programs, taking data).
What they found
Caregivers show up in 96% of the papers, but most only give consent or answer surveys. Fewer than one in ten studies ask them to collect any data. Training parents to run the intervention is common, yet we rarely measure what parents actually do.
How this fits with other research
Garikipati et al. (2024) just showed parents can deliver ABA after 40 hours of training and kids still gain skills. Becraft’s map says that kind of study is the exception, not the rule.
Bottema-Beutel et al. (2021) found that when caregivers talk while following the child’s focus, language grows. Becraft’s count agrees caregiver talk is measured, but shows we do it in dozens of different ways, so results are hard to compare.
Huntington et al. (2024) report that social-validity forms usually leave out the very people they serve. Becraft spotted the same hole: caregivers are present, yet their data voices are missing.
Why it matters
If you write a study plan this year, add a line that says ‘parent will record 10 trials daily.’ One extra column on your data sheet turns a passive observer into an active team member and gives you cleaner social-validity evidence at no extra cost.
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02At a glance
03Original abstract
We conducted a scoping review to characterize the role of caregiver involvement in behavior-analytic research. We reviewed eight behavioral-learning journals from 2011-2022 for works that included children or caregivers as participants and characterized caregiver involvement as passive (implications for caregivers, input, social validity) and active (implementation, caregiver behavior, training, caregiver-collected data). The review identified 228 studies, and almost all (96.1%; n = 219) involved caregivers in some capacity; 94.3% (n = 215) had passive involvement (26.8% had only passive involvement; n = 61), 69.3% (n = 158) had active involvement (1.8% had only active involvement; n = 4), and 3.9% (n = 9) had neither passive nor active involvement. Involvement generally increased over publication years. The most common types of involvement were implications for caregivers, implementation, and input; caregiver-collected data were rare. We propose considerations when engaging caregivers in research and suggest new avenues of inquiry related to caregivers' treatment objectives and social validity, treatment implementers, and caregiver-collected data.
Journal of Applied Behavior Analysis, 2024 · doi:10.1002/jaba.1035