Service Delivery

Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability.

Fairthorne et al. (2016) · Journal of autism and developmental disorders 2016
★ The Verdict

Moms of kids with ASD or non-Down ID land in psychiatric care more often—so screen them early.

✓ Read this if BCBAs working with young children with ASD or ID in clinic or home programs
✗ Skip if BCBAs serving only typically-developing clients or adult day programs

01Research in Context

01

What this study did

Fairthorne et al. (2016) tracked moms after birth. They used hospital records to see who needed mental-health care later.

The moms had kids with autism or intellectual disability (not Down syndrome). The team compared them with other moms.

02

What they found

These moms stayed in psychiatric hospitals longer. They also used more mental-health services after birth.

The pattern showed up for both autism and non-Down ID groups. Higher care use means higher caregiver strain.

03

How this fits with other research

Adams et al. (2021) pooled 32 studies and found the same thing: moms of kids with ID have more anxiety, depression, and stress. Jenny’s 2016 data sit inside that bigger picture.

Ferreira et al. (2022) gives hope. When moms joined 24 PECS sessions, their caregiver load dropped a bit. So teaching communication can ease the same burden Jenny measured.

Reeve et al. (2016) looked at adults, not kids. They also saw that autism plus ID spikes carer stress. Same year, same signal—just a different age group.

04

Why it matters

You now have hard proof that moms of kids with ASD or ID are high-risk for mental-health crises. Add a quick caregiver-stress screen at intake. One extra minute can trigger early referrals, support groups, or respite before mom hits the wall.

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Add two caregiver-stress questions to your intake form and flag any mom who scores high for immediate support referral.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder, intellectual disability
Finding
negative

03Original abstract

Compared to other mothers, mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have higher rates of treatment episodes for psychiatric disorders. We aimed to estimate the maternal burden of care by comparing the length of hospitalisations for psychiatric disorders and the treatment rates for psychiatric disorders after the birth in mothers of children with ASD/ID and no psychiatric history to that of other mothers with no psychiatric history. Mothers of children with ID of known cause (not Down syndrome) and mothers of children ASD without ID emerged as particularly vulnerable. Mothers of children with Down syndrome were resilient. The development of specialised organisations to provide support to mothers of children with ID of known cause (not Down syndrome) and mothers of children with ASD without ID could assist them to maintain their mental health.

Journal of autism and developmental disorders, 2016 · doi:10.1007/s10803-015-2629-9