Autism and pediatric practice: toward a medical home.
Kids with autism rarely receive coordinated Medical Home care—start pushing pediatric partners to build one shared plan.
01Research in Context
What this study did
Goodwin et al. (2012) wrote a narrative review. They argued that kids with autism rarely get Medical Home care.
Medical Home means one office coordinates all doctors, therapists, and family needs. The paper urged pediatricians to add this service.
What they found
The review found Medical Home use is low for children with ASD. Families bounce between separate providers without a clear quarterback.
The authors claimed better coordination would cut gaps, stress, and costs.
How this fits with other research
Ghanouni et al. (2026) extends the idea. Their interviews show youth who age out still need the same coordination. Information sharing and community links remain weak in adulthood.
McClain et al. (2020) also extends the call. They found school psychologists are ready-made care coordinators between clinic and classroom. The Medical Home concept simply moves into the school hallway.
Schott et al. (2021) shows the flip side. When pediatric Medical Home stops, two-thirds of autistic adults on waiver waitlists have unmet functional and mental-health needs. The gap L et al. warned about grows bigger after age 18.
Why it matters
You can treat the pediatrician’s office as the hub of a child’s team. Ask the doctor to add Medical Home billing codes, share a single care plan, and loop in school and ABA providers. One coordinated chart keeps scripts, referrals, and goals in the same place. Push for it now, because after high school the safety net frays fast.
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02At a glance
03Original abstract
The pediatrician sees a child for 11 well child visits by their third birthday. The provision of continuous primary care supports development of trust with parents, provides opportunity for screening and surveillance of autism spectrum disorders (ASD), allows monitoring the progress of children requiring therapy, and a framework to support and educate families. Families of children with ASD are less likely to report that they receive care in a Medical Home, a practice providing coordinated, accessible, continuous, culturally competent care. They report less access to specialty and family focused care compared to other children with special health care needs. It is a major challenge to identify and effect the solutions necessary to bring Medical Home care to all children with ASD.
Journal of autism and developmental disorders, 2012 · doi:10.1007/s10803-012-1474-3