Service Delivery

Attitudes of mothers towards their child with Down syndrome before and after the introduction of prenatal diagnosis.

Lenhard et al. (2007) · Intellectual and developmental disabilities 2007
★ The Verdict

Prenatal testing leaves mothers feeling more excluded yet better connected to advocacy groups, so boost social inclusion and group links.

✓ Read this if BCBAs serving families of young children with Down syndrome
✗ Skip if Clinicians working only with adult clients or non-DS diagnoses

01Research in Context

01

What this study did

Lenhard et al. (2007) asked mothers of children with Down syndrome how they felt about parenting. They compared answers from mothers who had a child before prenatal testing was common with mothers who had a child after testing became routine.

The team used a survey to measure feelings like guilt, social support, and sense of belonging.

02

What they found

Mothers in the post-testing group felt more left out of everyday social life. Yet they also felt more help from Down-syndrome advocacy groups. Guilt stayed low in both groups.

In short, prenatal testing changed the parenting experience in mixed ways.

03

How this fits with other research

Channell et al. (2023) later asked caregivers about adult employment. They also heard that outside supports shape family happiness. Both studies show services, not just the diagnosis, drive parent views.

Spanoudis et al. (2011) reviewed mental-health risk in Down syndrome. They found no higher rate of depression in the children. Wolfgang’s low-guilt result lines up with that; the child’s mood is not the main stress point.

Heyman et al. (2026) tracked mothers with intellectual disability and saw high, stable depression. Wolfgang’s mothers, by contrast, kept low guilt. The difference hints that the child’s label matters less than the parent’s own support needs.

04

Why it matters

When you meet a new family, ask when they learned about the diagnosis. If prenatal testing told them early, plan extra social inclusion goals. Link them to local Down-syndrome groups; the study shows these ties buffer feelings of isolation. Keep guilt checks brief—mothers rarely report it— and focus on building everyday community connections instead.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add a question about timing of diagnosis to your caregiver intake and offer a local Down-syndrome parent group flyer.

02At a glance

Intervention
not applicable
Design
survey
Population
down syndrome
Finding
mixed

03Original abstract

In 1970, before the introduction of prenatal diagnosis of chromosome anomalies, an unpublished questionnaire study concerning the social and emotional situation of mothers of children with Down syndrome was conducted in southern Germany. To assess the psychosocial impact of the availability of prenatal diagnosis on parents of genetically handicapped children, we re-evaluated and repeated the 1970 study over 30 years later. Although mothers' feelings of guilt for having a child with disabilities remained on a low level, today's mothers have a stronger feeling of being involuntarily segregated in society. On the other hand, they more often experience support and respect from outside, particularly through self-support groups; moreover, tendencies of active withdrawal from social life have decreased.

Intellectual and developmental disabilities, 2007 · doi:10.1352/1934-9556(2007)45[98:AOMTTC]2.0.CO;2