Service Delivery

Age of Diagnosis of Autism Spectrum Disorder in Nepal.

Shrestha et al. (2019) · Journal of autism and developmental disorders 2019
★ The Verdict

Nepalese kids are diagnosed with ASD at almost five years old, so start toddler screening and use family input to close the gap.

✓ Read this if BCBAs doing intake or community outreach in low- and middle-income clinics.
✗ Skip if Clinicians who only see adult clients or work where diagnosis is already under age three.

01Research in Context

01

What this study did

Shrestha et al. (2019) looked at medical charts in Nepal. They wanted to know how old kids are when they first get an autism diagnosis.

The team pulled every ASD case seen at one pediatric clinic. They wrote down age at diagnosis for each child.

02

What they found

The average age of diagnosis was 58 months. That is almost five years old.

Kids can be reliably diagnosed much earlier, so this gap is a big problem.

03

How this fits with other research

Montiel-Nava et al. (2024) asked caregivers in Latin America the same question. Parents there first worried at 22 months, yet diagnosis still waited until 46 months. Both studies show the same pattern: long delay after early warning signs.

Hirota et al. (2021) found a fix. They read routine baby-handbook notes in Japan. Social-communication delays were already written at 24 months. Using records that already exist could catch kids in Nepal before they reach five.

Sicherman et al. (2018) showed family help matters. Grandmothers or older brothers who saw the child often sped diagnosis up by five to ten months. Nepal’s late average could shrink if clinics invite these relatives to screening talks.

04

Why it matters

Every extra year without help means lost learning time. If you work in low-resource areas, start screening before age two. Ask caregivers about eye contact, pointing, and name response. Check any baby-book milestone notes already on file. Invite grandparents and siblings to visits; they see the child every day and can flag early signs. These small steps can pull the diagnosis age closer to the reliable window and get kids into therapy when it helps most.

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Add a one-page grandparent checklist to your intake packet and ask them to circle any missed baby-book milestones.

02At a glance

Intervention
not applicable
Design
case series
Sample size
246
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The current study investigated the age of diagnosis (AoD) of autism spectrum disorder (ASD) in Nepal by using de-identified data on 246 children with a diagnosis of ASD registered at AutismCare Nepal Society from 2010 to 2015. The mean AoD in children was 58 months (range 14-187 months). Majority of children were male (76%), lived in the Kathmandu valley (75%), and were from upper caste groups (62%). The mean diagnostic age of ASD in Nepal is much later than the age at which a reliable diagnosis is possible, indicating the need to reduce the gap between the age at which it is possible to diagnose ASD, and the average age at which ASD is currently diagnosed.

Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-019-03884-7