Service Delivery

Adult female and male siblings of persons with disabilities: findings from a national survey.

Hodapp et al. (2010) · Intellectual and developmental disabilities 2010
★ The Verdict

Adult siblings usually feel close and benefit from the bond, especially sisters who start families later.

✓ Read this if BCBAs writing adult-transition or family-support plans.
✗ Skip if Clinicians who only treat under-the kids with no sibling data need.

01Research in Context

01

What this study did

Busch et al. (2010) mailed a national survey to the adult brothers and sisters of people with mixed disabilities.

They asked about closeness, daily help given, and life choices like marriage and kids.

The team compared answers to U.S. census data to see if siblings looked different from other adults.

02

What they found

Most adults said the disability brought them closer to their brother or sister.

Women in the sample married and had children later than the average American woman.

Men looked like typical U.S. men, but both sexes reported personal growth from the role.

03

How this fits with other research

Dumont et al. (2014) saw no wellbeing gap in young siblings once family income was held steady. The two studies seem opposite, but Eric looked at kids’ test scores while M asked adults about feelings; age and yardstick explain the gap.

Meltzer (1983) warned that only "certain" siblings struggle. M’s 2010 numbers back this up: most adults rate the bond as good, updating the old warning with large-scale proof.

Granieri et al. (2020) later added siblings-in-law to the same survey line. Together the papers map a wider support circle than many BCBAs remember to invite.

04

Why it matters

You can stop assuming every sibling is a "time-bomb." Most grow into adults who value the relationship. Use this fact to open family meetings with hope, not pity. When you see later parenting or single life in adult sisters, treat it as a normal pattern, not a red flag. Finally, add spouses and partners to your invite list—Granieri et al. (2020) show they’re willing allies.

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Ask your adult clients, "Who else in the family should join our next meeting?"—then invite the sister or brother.

02At a glance

Intervention
not applicable
Design
survey
Sample size
1160
Population
mixed clinical
Finding
positive

03Original abstract

In this study, the authors used a national, Web-based survey to examine female and male siblings of individuals with disabilities. More than 1,160 adult siblings completed a 163-question survey about themselves, their siblings, and their sibling relationships. Most respondents reported fairly close contact with their siblings and positive sibling relationships, good health, and benefits from being a sibling to a brother-sister with disabilities. Compared with men, women reported benefiting more from the sibling relationship. Relative to the U.S. population, female (though not male) siblings married later and divorced less often, and these women had their first child at later ages. Implications are discussed regarding future research and service needs.

Intellectual and developmental disabilities, 2010 · doi:10.1352/1934-9556-48.1.52