Resistance and resilience in a life full of professionals and labels: narrative snapshots of Chris.
Chris’s fight against labels is a lesson: see the person first, the diagnosis second.
01Research in Context
What this study did
Van Hove et al. (2012) tell one woman’s story. Chris lives with an intellectual disability label.
The authors use her own words to show how she pushes back against the labels professionals give her.
This is a single case study, not an experiment.
What they found
Chris shows strong resilience. She refuses to let the disability label define her whole life.
She finds ways to keep control even when doctors, teachers, and support staff try to speak for her.
How this fits with other research
Ćwirynkało et al. (2022) extend this idea. They interviewed fathers with ID who also turn past trauma into parenting strength.
Y-Spanoudis et al. (2011) show the opposite side. In Taiwan, women with ID are often left out of their own sterilisation decisions. Chris’s push-back contrasts with their silence.
Bigby et al. (2016) found that better group homes share power with residents. Chris’s story gives a face to that principle.
Why it matters
You may write goals that sound clinical. Chris reminds you to ask, “What does the client want?”
Use her story in staff training. Pause before adding a new label or goal. Ask if it helps the person or just the paperwork.
When you see resistance, treat it as data, not defiance. It may be the client’s way of keeping dignity.
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02At a glance
03Original abstract
In this article, the authors relate the life of Chris through narrative snapshots. Chris asked the authors to tell her story. They decided that it could be used to provide an insight into the different ways people with labels are confronted with professional practices and rituals. Although Chris lived a "tough life," her story is full of resilience and resistance. Chris will be kept in the authors' memory as a strong woman, a teacher, and a friend.
Intellectual and developmental disabilities, 2012 · doi:10.1352/1934-9556-50.5.426