Reflections on opening Pandora's box.
The 1981 Asperger label helped society see a group, yet later reviews show the term is too blurry for clean diagnosis.
01Research in Context
What this study did
Wing (2005) looks back at the 1981 debut of Asperger syndrome as a named diagnosis. The paper asks whether giving the label to the public mainly helped or harmed kids and adults.
It is a story-style review, not a lab study. The author weighs social and clinical changes seen after doctors began using the new term.
What they found
The review says the label opened mostly good doors. More people learned the profile existed. Services, research, and self-understanding grew.
In the author’s view, the benefits outweighed any drawbacks. Naming the condition was like opening Pandora’s box, but hope stayed inside.
How this fits with other research
Sharma et al. (2012) update the tale. They show that DSM-IV criteria for Asperger and autism overlap so much that reliable split decisions are hard. Their data do not cancel Lorna’s social gains story; they just warn that the label is fuzzy.
Bertelli et al. (2025) carry the warning further. They argue the whole autism spectrum is now stretched too wide and risks watering down help. This extends Lorna’s reflection by asking if we have opened the box too much.
Davis et al. (2009) give voices to adults who received the label. People report relief, new identity, and better self-care. The personal stories support Lorna’s claim that naming can empower, even while later papers question diagnostic sharpness.
Why it matters
You can hold both truths: the Asperger label boosted awareness and still lacks clean borders. When you write reports, describe the client’s skill pattern instead of leaning on a shaky category. Keep the respectful language that builds self-worth, but pair it with precise behavior targets so services stay focused and fair.
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02At a glance
03Original abstract
Publishing my paper on Asperger's syndrome in 1981, and suggesting that it is part of the autistic spectrum, has had various consequences. These include the growth of interest in the syndrome among the general public as well as professionals. Controversy over definitions of subgroups and prevalence of autistic spectrum disorders has increased. Adult psychiatrists are becoming aware that high functioning autistic disorders can underlie psychiatric conditions. Naming the condition has helped many with the syndrome to greater understanding of their skills and disabilities. It has highlighted the special contribution people with Asperger syndrome have made to the world. There has been a growth of specialist services but many more are needed. Describing and naming the syndrome has had mainly positive effects.
Journal of autism and developmental disorders, 2005 · doi:10.1007/s10803-004-1998-2