Practitioner Development

Reflections on opening Pandora's box.

Wing (2005) · Journal of autism and developmental disorders 2005
★ The Verdict

The 1981 Asperger label helped society see a group, yet later reviews show the term is too blurry for clean diagnosis.

✓ Read this if BCBAs who write reports or explain diagnoses to families and adults.
✗ Skip if Clinicians looking only for strict diagnostic lab studies.

01Research in Context

01

What this study did

Wing (2005) looks back at the 1981 debut of Asperger syndrome as a named diagnosis. The paper asks whether giving the label to the public mainly helped or harmed kids and adults.

It is a story-style review, not a lab study. The author weighs social and clinical changes seen after doctors began using the new term.

02

What they found

The review says the label opened mostly good doors. More people learned the profile existed. Services, research, and self-understanding grew.

In the author’s view, the benefits outweighed any drawbacks. Naming the condition was like opening Pandora’s box, but hope stayed inside.

03

How this fits with other research

Sharma et al. (2012) update the tale. They show that DSM-IV criteria for Asperger and autism overlap so much that reliable split decisions are hard. Their data do not cancel Lorna’s social gains story; they just warn that the label is fuzzy.

Bertelli et al. (2025) carry the warning further. They argue the whole autism spectrum is now stretched too wide and risks watering down help. This extends Lorna’s reflection by asking if we have opened the box too much.

Davis et al. (2009) give voices to adults who received the label. People report relief, new identity, and better self-care. The personal stories support Lorna’s claim that naming can empower, even while later papers question diagnostic sharpness.

04

Why it matters

You can hold both truths: the Asperger label boosted awareness and still lacks clean borders. When you write reports, describe the client’s skill pattern instead of leaning on a shaky category. Keep the respectful language that builds self-worth, but pair it with precise behavior targets so services stay focused and fair.

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Add a short paragraph in your next report that lists the client’s top strengths and needs without using ‘Asperger’ as the only descriptor.

02At a glance

Intervention
not applicable
Design
narrative review
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Publishing my paper on Asperger's syndrome in 1981, and suggesting that it is part of the autistic spectrum, has had various consequences. These include the growth of interest in the syndrome among the general public as well as professionals. Controversy over definitions of subgroups and prevalence of autistic spectrum disorders has increased. Adult psychiatrists are becoming aware that high functioning autistic disorders can underlie psychiatric conditions. Naming the condition has helped many with the syndrome to greater understanding of their skills and disabilities. It has highlighted the special contribution people with Asperger syndrome have made to the world. There has been a growth of specialist services but many more are needed. Describing and naming the syndrome has had mainly positive effects.

Journal of autism and developmental disorders, 2005 · doi:10.1007/s10803-004-1998-2