An Equity-Based Research Agenda to Promote Social Inclusion and Belonging for People With IDD.
Put people with IDD on the payroll as co-researchers and check every study for race-gender bias.
01Research in Context
What this study did
Bogenschutz et al. (2024) wrote a position paper. They asked, "How can we make social-inclusion research fair for people with IDD?"
The team listed six big research goals. They want studies that treat race, gender, and disability together. They want people with IDD to help run the studies, not just answer questions.
What they found
The paper does not give new data. Instead, it gives a road map. The six goals push researchers to share power and check their own biases.
Key idea: if we skip equity, even good inclusion projects can leave people out.
How this fits with other research
Zwiya et al. (2023) said the same thing one year earlier. They urged the field to move from deficit models to participatory work. Bogenschutz et al. (2024) turns that urge into six concrete goals.
Jackson et al. (2025) picks up where Matthew stops. They show what supports people with IDD need to be co-researchers. Think of the three papers as a timeline: call for change → six goals → how-to manual.
Simplican et al. (2015) defined social inclusion long ago. Their ecological model never talked about race or pay equity. Bogenschutz et al. (2024) updates the model by adding intersectionality and fair authorship.
Why it matters
You can start today. Ask your next client or student with IDD to co-write the survey questions. Offer gift cards, not just pizza. Track whose names go first on posters. Small moves like these tick off two of the six goals before your next team meeting.
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02At a glance
03Original abstract
Having a sense of social inclusion and belonging, typically characterized by our personal relationships and community participation, is the central essence of life for most people, yet it remains elusive for many people with intellectual and developmental disabilities (IDD). This article summarizes the work of a diverse group of researchers and advocates to propose 6 big-picture, equity-based goals to drive future research in the field: (1) understanding the role of intersectionality, (2) understanding intimate relationships, (3) promoting formation of communities of care to support social inclusion, (4) understanding life course trajectories of social inclusion, (5) understanding social inclusion in virtual spaces, and (6) understanding how to promote social inclusion in the entire research process.
Intellectual and developmental disabilities, 2024 · doi:10.1352/1934-9556-62.3.186