The Role of Parent Advocacy in Autistic Youths' Self-Determination.
Teaching parents to advocate works best for teens who already show daily living skills, low problem behavior, and a warm bond with mom or dad.
01Research in Context
What this study did
Moser et al. (2025) asked whether parents who speak up for their autistic teens also raise teens who speak up for themselves. They tracked parent advocacy and youth self-determination in the same families. The team also checked if the link changed when kids had different levels of daily living skills, behavior problems, or warmth with their parents.
What they found
Parent advocacy and teen self-determination moved together in a good way. The boost was strongest when the teen already had solid adaptive skills and few externalizing behaviors. A close parent-teen bond made the boost even bigger. When those supports were missing, advocacy still helped, just not as much.
How this fits with other research
Marroquin et al. (2014) ran a parent advocacy coaching program for preschool families. After coaching, families used more community autism services. Carly et al. now show the same advocacy mindset pays off again when kids become teens, this time by growing the teen’s own voice.
Li et al. (2025) widened the lens to adult brothers and sisters. They found siblings use two different advocacy styles: one-on-one help and big-system change. Carly’s parent findings pair well—both studies say family advocacy is not one-size-fits-all.
Davy et al. (2024) saw that caregivers join more activities when their 7- to 12-year-olds have stronger adaptive skills. Carly et al. echo that pattern: adaptive skills again act as the amplifier, but now for teen self-determination instead of caregiver participation.
Why it matters
You can stop waiting for the “perfect” client profile before you coach parents to advocate. Start teaching advocacy skills now, then add extra layers if the teen already shows daily living strengths and calm behavior. Build parent-child warmth at the same time—simple rapport goals like shared meals or 5-minute check-ins count. When those pieces line up, advocacy practice in IEP meetings or community programs will transfer faster to the teen speaking up on their own behalf.
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02At a glance
03Original abstract
Parent advocacy is important for the transition outcomes of autistic youth. However, it is unclear whether parent advocacy efforts support or stifle youths' self-determination. This study examined concurrent (n = 180) and longitudinal (n = 134) associations between parent advocacy and transition-aged autistic youths' self-determination (as reported by parents) and explored whether individual and family characteristics moderated this relationship. Cross-sectional results indicated a positive association between parent advocacy and self-determination for youth with higher adaptive behavior, lower externalizing behavior, and higher parent-child relationship quality. Longitudinal results demonstrated that change in parent advocacy related to change in self-determination for youth with lower adaptive behavior and higher externalizing behavior. Findings suggest that targeting parent advocacy could enhance self-determination skills in autistic youth.
American journal on intellectual and developmental disabilities, 2025 · doi:10.1177/10442073221130748