Autism & Developmental

The experience of infantile autism: a first-person account by Tony W.

Volkmar et al. (1985) · Journal of autism and developmental disorders 1985
★ The Verdict

An autistic adult’s own story shows clients have full inner lives—hear them before you intervene.

✓ Read this if BCBAs working with autistic teens or adults in any setting.
✗ Skip if Clinicians looking for treatment effect data or large samples.

01Research in Context

01

What this study did

Tony W., an autistic adult, tells his life story in his own words. The paper is a single case study with no tests or trials. It gives a first-person view of growing up and living with autism.

The account covers childhood through adulthood. Tony describes how he thinks, feels, and sees the world.

02

What they found

There are no numbers or graphs. The finding is the story itself. Tony shows that autistic people have rich inner lives and can speak for themselves.

His words remind clinicians that clients understand more than they may show.

03

How this fits with other research

Yelton (1979) told a similar adult life story first. Tony W. extends that line by adding another voice. Together they form a small shelf of early insider accounts.

Manning et al. (2026) later asked autistic kids to speak. Their study fits with Tony’s message: listen to the person, not just the label.

Kiehl et al. (2024) pooled 24 later studies on adult diagnosis. All report relief when people finally feel heard. Tony’s 1985 piece is one seed in that larger field.

Zakai-Mashiach (2025) tracked autistic students through school. Like Tony, they found safety at home and stress at school. The themes match across four decades.

04

Why it matters

Read Tony’s words before you write goals. Ask clients to share their own story, even if they type or use pictures. Use their words to guide intervention choices. When you listen first, rapport grows faster and goals feel meaningful to the person who must live them.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Start your next session by asking the client to tell or show one thing they want you to know about their life.

02At a glance

Intervention
not applicable
Design
case study
Sample size
1
Population
autism spectrum disorder
Finding
not reported

03Original abstract

A first-person account of the experience of autism is presented by a 22-year-old man who was first evaluated at the Yale Child Study Center at 26 months of age. His history and current status are reviewed. Factors related to outcome and diagnostic issues are discussed. Such accounts may be helpful in guiding research.

Journal of autism and developmental disorders, 1985 · doi:10.1007/BF01837898