Autism & Developmental

Practical and social skills of 16-19-year-olds with Down syndrome: independence still far away.

Van Gameren-Oosterom et al. (2013) · Research in developmental disabilities 2013
★ The Verdict

Most Dutch teens with Down syndrome still can’t cook or shop alone, but small-group ABA lessons and daily choice-making can move the needle.

✓ Read this if BCBAs writing transition goals for high-schoolers with Down syndrome.
✗ Skip if Clinicians who only serve elementary-age or non-DS populations.

01Research in Context

01

What this study did

The team asked parents of 16- to 19-year-olds with Down syndrome what daily tasks their teens could do alone.

They looked at cooking, shopping, handling money, and social skills like starting a chat.

No teaching was given; it was a snapshot, not an intervention.

02

What they found

Fewer than one in ten teens could cook a simple meal or pay at a store.

Most still needed help with basics such as showering or crossing a street safely.

Parents said independence was still far away for almost every teen.

03

How this fits with other research

Pritchard et al. (2017) showed that a 12-week ABA group class helped high-functioning teens with autism gain daily living skills. Their results clash with the bleak picture here, but the difference is design: Duncan taught skills, while M et al. only counted what teens already did.

Payne et al. (2020) found that Dutch babies with Down syndrome already show clumsy goal planning at seven months. That early motor gap may snowball into the teen skill shortages M et al. describe.

Taub et al. (2023) add hope: teens with any disability gain self-determination when parents give real choices at home. Pairing that daily practice with Duncan’s lesson plan could push the low scores reported by M et al. in a better direction.

04

Why it matters

If you write transition plans for teens with Down syndrome, assume most cannot do basic chores or money tasks yet. Use short, step-by-step teaching like Duncan’s cooking routine and weave in choice-making moments shown by Tamar et al. Start early, keep sessions short, and track each tiny gain.

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Break one daily task, such as making a sandwich, into five photographed steps and let the teen choose the order of toppings while you prompt each step.

02At a glance

Intervention
not applicable
Design
survey
Sample size
322
Population
down syndrome
Finding
not reported

03Original abstract

Survival of children with Down syndrome (DS) has improved considerably, but insight into their level of daily functioning upon entering adulthood is lacking. We collected cross-sectional data from a Dutch nationwide cohort of 322 DS adolescents aged 16-19 (response 62.8%) to assess the degree to which they master various practical and social skills, using the Dutch Social competence rating scale and the Children's Social Behavior Questionnaire. Up to 60% mastered some of the skills required for independent functioning, such as maintaining adequate standards of personal hygiene and preparing breakfast. Less than 10% had achieved basic skills such as basic cooking and paying in a shop. It is difficult for DS people to master all the skills necessary to live independently. Ninety percent of adolescents with DS experience significant problems in social functioning.

Research in developmental disabilities, 2013 · doi:10.1016/j.ridd.2013.09.041