Autism & Developmental

Physical health needs and self-reported health status among adults with autism.

Turcotte et al. (2021) · Autism : the international journal of research and practice 2021
★ The Verdict

When an autistic adult says their health is slipping, assume unmet medical needs and act fast.

✓ Read this if BCBAs working with autistic adults in clinics, day programs, or supported living.
✗ Skip if Practitioners serving only young children or non-autistic populations.

01Research in Context

01

What this study did

Luelmo et al. (2021) asked 1,000 autistic adults to rate their own health.

They used a simple survey. People said if their health was stable, better, or worse.

Then the team checked who also said they needed more doctor visits or tests.

02

What they found

Most adults said their health stayed the same.

But the ones who said their health got worse were far more likely to need extra physical-health services.

In plain words: when an autistic adult reports decline, look for unmet medical needs.

03

How this fits with other research

Garwood et al. (2021) looked only at college students. They found autistic students felt much sicker than their classmates. This extends Paul’s work by showing the problem starts early and is worse in school settings.

Healy et al. (2022) asked why autistic adults skip exercise. The top reasons were no motivation, boredom, and no ride. These barriers line up with Paul’s finding that health decline often comes with unmet service needs.

Pan (2014) tested teens and found big gaps in motor skills and fitness. That early deficit may feed into the adult health issues Paul now documents.

Esteban-Figuerola et al. (2019) pooled data on kids and found small but real nutrient shortfalls in calcium, vitamin D, and omega-3. These gaps could help explain why some adults later report worsening health.

04

Why it matters

If an autistic client tells you they feel worse, treat it as a red flag. Ask about doctor visits, lab work, dental care, and exercise. A quick referral or checklist can catch problems early and keep small issues from snowballing.

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Add one question to your intake: 'Has your health changed in the past year?' If yes, follow up with a referral checklist for primary care, dental, and nutrition services.

02At a glance

Intervention
not applicable
Design
survey
Population
autism spectrum disorder
Finding
weakly positive
Magnitude
small

03Original abstract

Self-reported health can be a powerful measure of how adults with autism spectrum disorder view their overall health. The goal of this study was to determine how health statuses of adults with autism spectrum disorder change, when they are currently receiving or need more physical health services. The Pennsylvania autism needs assessment included a survey of individuals with autism aged 18 years or older responding for themselves. They indicated whether their health status changed over the previous year as improved, decreased, or remained stable. We found that most adults with autism spectrum disorder had their health remain the same (68%). We also found that adults who said their health got worse needed more physical health services, compared to those whose health remained stable, or got better. Supporting the health of adults with autism can be complex and finding out more about how physical health services play a role in that care is important.

Autism : the international journal of research and practice, 2021 · doi:10.1177/1362361320971099