Parents' and young adults' perspectives on transition outcomes for young adults with autism.
Young adults with autism and their parents say success is personal, so cookie-cutter goals miss the mark.
01Research in Context
What this study did
Sosnowy et al. (2018) asked parents and young adults with autism what a good transition to adulthood looks like. They used open-ended interviews so people could define success in their own words.
The team did not test a program. They simply listened and grouped the answers into themes.
What they found
Success looks different for everyone. One person may value a paid job, another may care about having friends or feeling safe.
Standard boxes like employment, college, or living alone miss these personal views.
How this fits with other research
Krafft et al. (2019) asked the same group almost the same questions and got the same result: parents hope across many life areas, not just work. This direct replication boosts our confidence in the finding.
Webster et al. (2022) seem to disagree at first. Their survey shows schools rarely let autistic students pick their own goals. The clash is only on the surface: Collette shows what success should look like, Amanda shows schools are not doing it yet.
Whaling et al. (2025) widen the lens. They talked to caregivers of adults up to age 65 and found service gaps stay wide after 25. This extends Collette’s point that transition is a long, winding road, not a single finish line.
Why it matters
If you write transition goals, stop using only employment or independent-living scores. Ask the client and family what a good week looks like, then build goals around that picture. One easy step: add a “personal valued outcome” box to every plan and review it yearly.
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02At a glance
03Original abstract
Existing research shows that young adults with autism spectrum disorder have poorer outcomes than their peers with other developmental disabilities in the key areas of independent living, postsecondary education, and employment. However, we understand little about how young adults with autism and their families understand and value outcomes and whether these indicators match their goals and aspirations. We interviewed parents (n = 21) and young adults with autism spectrum disorder (n = 20) about their experiences with the transition to adulthood to understand what they consider to be desirable outcomes and how they seek to achieve them. Understanding these perspectives will help identify areas of need as well as disconnections between service objectives and the goals of young adults and their families. Participants described outcomes as more complex and nuanced than current conceptions and measures account for. They defined and evaluated outcomes in relation to their or their child's individual abilities, needs, and desires. These findings provide important insight into challenges to and facilitators of desired outcomes, which has implications for programming, service delivery, and policy.
Autism : the international journal of research and practice, 2018 · doi:10.1177/1362361317699585