Autism & Developmental

Longitudinal perspectives of child positive impact on families: relationship to disability and culture.

Blacher et al. (2013) · American journal on intellectual and developmental disabilities 2013
★ The Verdict

Latino mothers keep seeing their child with ID as a big family plus, while Anglo mothers’ positive view fades—so target joy, not just problem behavior.

✓ Read this if BCBAs writing family goals for preschool or early-elementary kids with ID.
✗ Skip if Clinicians who only see adolescents or adults.

01Research in Context

01

What this study did

Blacher et al. (2013) followed the mothers for three years. Half had a child with intellectual disability; half had a typically-developing child.

Half of each group were Anglo; half were Latino. Every year the moms filled out a short scale that asked, “How much does this child add joy, love, or pride to the family?”

02

What they found

Latino moms kept the same high “positive impact” score every year, no matter if the child had ID or not.

Anglo moms of kids with ID dropped one full point on the 5-point scale by year three. Anglo moms of typical kids stayed steady.

03

How this fits with other research

Carr et al. (2013) looked at negative impact in autism moms and also saw culture matter. They tracked stress rising as kids hit adolescence, but African-American moms with less school reported less stress than white moms. Both studies show ethnicity shapes how moms feel about disability over time.

Gaynor et al. (2008) found that moms of kids with ID who accept tough thoughts stay calmer. Jan’s team did not measure acceptance, so the Latino moms’ steady scores might come from stronger family or faith acceptance—Maule et al. (2017) saw the same coping style in Indian moms.

Jackson et al. (2025) later tested the Family Stress Model in ID families and showed parent-child closeness can blunt the bad effects of poverty. Jan’s Latino families kept seeing high “positive impact,” which may be the protective side of that same coin.

04

Why it matters

When you meet a family, ask what the child adds to the home, not just what he needs. If an Anglo mom’s answer drops over time, add parent joy-building goals to the plan. If a Latino mom’s answer stays high, weave extended-family praise into sessions—grandma’s cheers can double as natural reinforcement.

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Add one question to your caregiver interview: “Tell me one happy moment this week that happened because of your child.” Write it in the plan and build future programs around that moment.

02At a glance

Intervention
not applicable
Design
other
Sample size
219
Population
intellectual disability, neurotypical
Finding
mixed

03Original abstract

This study examined mothers' perceptions of the positive impact of having a child with an intellectual disability. Trajectories of positive impact from 7 time points were developed using latent growth modeling and 2 predictors: culture (Anglo, Latino) and child disability status (intellectual disability, typical development). Data were from 219 mothers of children from age 3 to 9 years. Growth trajectories reflected a general decline in positive impact on Anglo mothers. On average, at age 3, Anglo mothers reported significantly lower initial values on positive impact when their children had an intellectual disability, but Latino mothers did not. Across all time points, Latino mothers had higher scores on the positive impact, regardless of whether they had a child with an intellectual disability or a typically developing child.

American journal on intellectual and developmental disabilities, 2013 · doi:10.1352/1944-7558-118.2.141