Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers.
African American autism caregivers carry higher stress and lean on religious coping more than Euro-American families.
01Research in Context
What this study did
Williams et al. (2019) asked two groups of parents to fill out surveys. One group was African American. The other group was Euro-American. All parents had a child with autism.
The surveys measured how much stress the parents felt and how they coped with it. The team then compared the two groups.
What they found
African American parents scored higher on stress. They also used more kinds of coping tools. Prayer and church support topped their list.
Euro-American parents used fewer coping styles. Their stress levels were lower on average.
How this fits with other research
Onovbiona et al. (2024) extends these findings. They interviewed Black caregivers and heard the same high stress. The new study adds why: racism and long clinic drives make life harder.
Čolić et al. (2022) also extends the picture. Their review shows racism is common in ABA clinics. This helps explain why stress is high and why churches become a safe place to cope.
Laposa et al. (2017) used a similar survey style. They found that coping skills, not hours of care, best predict strain. This matches Williams et al. (2019): more coping tools do not erase stress, but they help parents survive it.
Why it matters
You may see only the child, yet the parent’s stress walks through the door with them. African American caregivers feel extra weight. Ask about their supports. Add faith-based options if they want them. Offer flexible times and telehealth to cut logistical barriers shown in later studies. Small moves like these lower stress and keep families in treatment.
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02At a glance
03Original abstract
The purpose of the present study was to understand how caregiver stress and coping behaviors impact African American and Euro-American families differently when caring for a child with autism. This study used discriminate function analysis to contrast the stress and coping profiles of Euro-American caregivers who are more acculturated with the majority culture with African American caregivers who ascribe to more traditional values. A sample of 103 families was recruited (52 Euro-American, 51 African American). African American families reported significantly more stress and utilizing more varied coping strategies than their Euro-American counterparts. Additional differences were found between the high and low acculturated African American groups such that low acculturated African Americans were more likely to engage in religious coping.
Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-018-3802-8