Autism & Developmental

Leisure Activity and Caregiver Involvement in Middle-Aged and Older Adults With Down Syndrome.

Mihaila et al. (2017) · Intellectual and developmental disabilities 2017
★ The Verdict

Adults with Down syndrome need planned, caregiver-supported chances to move and think during free time.

✓ Read this if BCBAs writing day-hab or in-home programs for adults with Down syndrome.
✗ Skip if Clinicians who only serve early-intervention or typically developing clients.

01Research in Context

01

What this study did

Mihaila et al. (2017) asked caregivers about the free-time habits of adults with Down syndrome.

The survey covered 25- to 65-year-olds living at home or in community houses.

Caregivers listed what the adults did for fun and how often they joined in.

02

What they found

Most adults with Down syndrome spent free time on easy, social fun like TV or music.

Very few took part in sports, puzzles, or other body-or-brain workouts.

When caregivers joined in, the adults were more likely to move and play.

03

How this fits with other research

Capio et al. (2013) saw the same gap in Spain: people with developmental disabilities want active fun but stay stuck at home.

Nordstrøm et al. (2013) strapped accelerometers on adults with Down syndrome and clocked only 27 minutes a day of brisk movement—objective proof of the low activity caregivers reported.

Laxton et al. (2026) later counted eight sedentary hours a day in group homes, extending the 2017 leisure picture into hard sit-time data.

Bauman et al. (1996) warned that daily-living skills drop after age 40 in Down syndrome; low stimulating leisure may be one missing piece of that decline.

04

Why it matters

You can treat leisure like any other adaptive skill. Build short, fun movement or thinking games into daily schedules. Invite caregivers to co-lead: their presence is a cheap, powerful prompt. Start small—ten-minute dance video, bean-bag toss, or simple Sudoku with a peer—and track participation just like you track food or toileting skills.

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Pick one five-minute physical game and one thinking game, teach staff to do them at 10 a.m. and 2 p.m., and tally client participation for one week.

02At a glance

Intervention
not applicable
Design
survey
Sample size
62
Population
down syndrome
Finding
not reported

03Original abstract

The present study examined leisure activity and its association with caregiver involvement (i.e., residence and time spent with primary caregiver) in 62 middle-aged and older adults with Down syndrome (aged 30-53 years). Findings indicated that middle-aged and older adults with Down syndrome frequently participated in social and passive leisure activities, with low participation in physical and mentally stimulating leisure activities. Residence and time spent with primary caregiver were associated with participation in physical leisure activity. The findings suggest a need for support services aimed at increasing opportunities for participating in physical and mentally stimulating leisure activity by middle-aged and older adults with Down syndrome. These support services should partner with primary caregivers in order to best foster participation in physical leisure activity.

Intellectual and developmental disabilities, 2017 · doi:10.1002/mrdd.20163