Autism & Developmental

"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

Bury et al. (2023) · Journal of autism and developmental disorders 2023
★ The Verdict

Most autistic adults prefer "autistic person" or "on the autism spectrum," so ask before you write or speak.

✓ Read this if BCBAs who write reports, attend IEPs, or coach staff in any setting.
✗ Skip if Practitioners who only work with non-speaking clients under five.

01Research in Context

01

What this study did

The team asked 198 autistic adults in Australia which words they want others to use. They gave a list of ten labels like "person with autism" and "autistic person." Participants picked the three they liked best and the three they disliked most.

02

What they found

Top picks were "autistic," "person on the autism spectrum," and "autistic person." Least liked were "person affected by autism" and "suffering from autism." Most adults saw autism as part of their identity, not an illness.

03

How this fits with other research

Logos et al. (2025) show that police officers often misread autistic traits. Using the person’s chosen label is one quick way to show respect and maybe lower tension.

Barrett et al. (2015) found that hospital staff who listened to parents got better results. Asking an adult client the same question — "What should I call you?" — keeps that client-centered spirit.

Mahdi et al. (2018) list 110 ways autism can affect life. Language choice is one of the easiest environmental factors you can control today.

04

Why it matters

Your report might be read by teachers, doctors, or employers who copy your words. Writing "autistic adult" or asking first sets a respectful tone. It costs nothing and aligns with the client’s own identity. Start the session with "How do you like to describe yourself?" and use that term throughout.

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Add a one-line preference question to your intake form: "What words do you want us to use about your autism?"

02At a glance

Intervention
not applicable
Design
survey
Sample size
198
Population
autism spectrum disorder
Finding
not reported

03Original abstract

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

Journal of autism and developmental disorders, 2023 · doi:10.1007/s10803-013-1927-3