Assessment & Research

Changes in Autism Nosology: The Social Impact of the Removal of Asperger's Disorder from the Diagnostic and Statistical Manual for Mental Disorders, Fifth Edition (DSM-5).

Katz et al. (2020) · Journal of autism and developmental disorders 2020
★ The Verdict

Dropping the Asperger’s label and writing ‘ASD’ can invite extra stigma in classrooms and workplaces, so choose context and words with care.

✓ Read this if BCBAs writing transition plans, college accommodation letters, or job-coaching notes for young adults.
✗ Skip if Clinicians serving only early-elementary kids where daily labels are less public.

01Research in Context

01

What this study did

Katz et al. (2020) asked college students and workers how they felt about two labels: ‘Asperger’s’ and ‘Autism Spectrum Disorder’.

They used short stories. In some stories the person was a classmate or co-worker (high contact). In others the person was a distant stranger (low contact).

After each story, the students rated how warm, capable, and willing to interact they felt toward the person.

02

What they found

The old ‘Asperger’s’ label won more warmth and respect than the new ‘ASD’ label— but only when people expected close daily contact.

In low-contact scenes, the ‘ASD’ label still beat having no label at all.

So the same person got different scores depending on the label and the setting.

03

How this fits with other research

Spanoudis et al. (2011) once showed that odd social behaviors, not the label, drove stigma toward adults with Asperger’s. Lindsay’s team flips that: here the label itself moves the needle. The gap is real— in 2011 people watched videos of real behaviors; in 2020 they read short vignettes with no behavior shown. When no behavior is visible, the name on the page matters more.

Lancioni et al. (2009) tracked school records and saw ‘Asperger’ and ‘ASD’ labels climb while ‘PDD-NOS’ vanished. Lindsay’s findings warn that simply folding Asperger’s into ASD may trade clinical neatness for extra stigma in classrooms and offices.

Vassos et al. (2023) asked autistic adults what words they want. Most picked ‘autistic person.’ Lindsay shows outsiders still react differently to ‘ASD’ versus ‘Asperger,’ so practitioner choices can clash with client identity.

04

Why it matters

Your report language shapes doors that open or close for clients. In college or job support plans, spell out strengths first, then add ‘ASD’ only if it helps secure services. If stigma risk is high, use plain descriptions like ‘needs quiet space’ before any label. Always ask the client which words feel right to them.

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Before you send a report, swap one sentence: lead with the student’s strength, then note the diagnosis only if it unlocks needed support.

02At a glance

Intervention
not applicable
Design
survey
Sample size
71
Population
not specified
Finding
mixed

03Original abstract

This study examined the perception of an ASD label compared to Asperger's syndrome or no diagnosis. Seventy-one undergraduates read an adapted vignette (Ohan et al. J Autism Dev Disord 45:3384-3389, 2015) about an undergraduate with ASD, Asperger's Syndrome, or No Diagnosis. Participants also completed questionnaires. More positive ratings emerged for the Asperger's and ASD labels than No Diagnosis in low contact scenarios, particularly when involving greater social versus professional interaction. In contrast, more positive ratings emerged for the Asperger's compared to the ASD and No Diagnosis on high contact items. Ratings between low and high contact items differed only for ASD. Results demonstrate the impact of diagnostic labels across social contexts and support the need for education surrounding changes in nosology.

Journal of autism and developmental disorders, 2020 · doi:10.1007/s10803-019-04233-4