Autism & Developmental

Islands of loneliness: exploring social interaction through the autobiographies of individuals with autism.

Causton-Theoharis et al. (2009) · Intellectual and developmental disabilities 2009
★ The Verdict

Autistic people often want friends—check your 'no interest' label before you cut social teaching.

✓ Read this if BCBAs writing social goals for any age or setting.
✗ Skip if Practitioners only doing discrete academic programs with no social component.

01Research in Context

01

What this study did

Causton-Theoharis et al. (2009) read autobiographies written by adults with autism. They wanted to see how these writers talk about wanting friends and being part of groups.

The team did not test any treatment. They simply looked for themes in the life stories.

02

What they found

Most writers said they crave social connection. They wrote about trying to fit in and feeling lonely when they could not.

The stories show active social work, not lack of interest. This goes against the old idea that autistic people do not care about others.

03

How this fits with other research

Bottema-Beutel et al. (2016) asked teens with autism what social skills groups they like. The teens wanted peer helpers and shared games, not adult lectures. Both studies use the voices of autistic people to show they want friends.

Loo et al. (2024) interviewed adults in Singapore. They found that many start 'camouflaging' in childhood just to connect and avoid bullying. This backs up the autobiography finding that social hunger is real and lifelong.

Chen et al. (2016) used beepers to catch feelings in real time. Social moments brought both joy and anxiety. This mixed result helps explain why autobiographies can sound both eager and hurt at the same time.

04

Why it matters

Before you skip social goals because a client seems 'uninterested,' read a page from their point of view. Use peer buddies, shared activities, and small safe steps. Assume social hunger is there; your job is to lower the barriers, not the bar.

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Add one peer buddy to your client's schedule and watch for signs of interest, not avoidance.

02At a glance

Intervention
not applicable
Design
qualitative
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Assumptions of difficulties with social interaction, or lack of interest in social interaction, are central to many definitions and conventional understandings of autism. However, many individuals with autism describe a strong craving social interaction. This article uses autobiographical accounts written by individuals who identified as autistic as a source of qualitative research data and specifically explores the ways these texts address issues of social relationships. Using narrative inquiry, the authors explored how individuals with autism described their own notions of and experiences with social interaction. This article discusses the broad themes of (a) the desire to have connections and (b) navigation through the world of people. Last, implications for the education of individuals with autism are considered.

Intellectual and developmental disabilities, 2009 · doi:10.1352/1934-9556-47.2.84