'I was just so different': The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships.
Adult-diagnosed autistic women describe gender-based social pain that typical autism tools skip.
01Research in Context
What this study did
Kanfiszer et al. (2017) talked with women who learned they were autistic after age 18. The team asked how gender shaped their friendships, work life, and sense of self. They used long interviews and looked for shared story lines.
What they found
Two big themes came up again and again. First, the women felt their gender identity clashed with being autistic. Second, they told stories of social pain, masking, and finally finding peers who understood them. These stories are missing from most autism checklists.
How this fits with other research
Seers et al. (2021) repeated the same idea with a new group and got the same results. Their women also rejected deficit language and felt freed by self-acceptance.
Hsieh et al. (2014) looked at teenage girls, not adults. The teens told similar tales of feeling wrong for their gender. Lucie's work shows the story keeps going after high school.
Lineberry et al. (2023) zoomed in on the roadblock side. They mapped why Australian women struggle to even get assessed. Lucie's paper adds the inside view once the label finally lands.
Why it matters
If you assess or support autistic women, know that standard tools miss gendered stress. Ask about masking, friendship burnout, and times they felt "too much" or "not enough" as women. Add peer-run groups to your referral list. A simple question like "How has being a woman shaped your autism experience?" can open a richer plan.
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02At a glance
03Original abstract
Existing literature exploring autism spectrum disorders within female populations predominantly utilises quantitative methodology. A limited number of small-scale, qualitative studies have explored the experiences of adolescent girls with autism spectrum disorder, but adult women have remained largely unheard. This study aims to broaden the stories told within autobiographical literature and empower those within the wider community of women with autism spectrum disorder. In doing so, it seeks to extend existing conceptualisations of experience to include socially and culturally located factors. A qualitative methodology was adopted, utilising multi-stage narrative analysis. Seven semi-structured interviews with women who received a diagnosis in adulthood were conducted. Recruitment spanned community mental health services, an inpatient service and a community support group. From the women's diverse experiences and stories emerged two broad categories related to gender identity and social relationships. The findings are discussed in relation to existing constructs of autism in women.
Autism : the international journal of research and practice, 2017 · doi:10.1177/1362361316687987