Autism & Developmental

Functional fitness of adults with Down syndrome: a longitudinal study.

Boer (2024) · Journal of intellectual disability research : JIDR 2024
★ The Verdict

Adults with Down syndrome lose balance, strength, and stamina fast after 35—start preventive exercise in early adulthood.

✓ Read this if BCBAs serving adults with Down syndrome in day programs or residential settings.
✗ Skip if Clinicians working only with children under 12 or non-DS populations.

01Research in Context

01

What this study did

Boer (2024) tracked the same adults with Down syndrome for 12 years. They tested balance, leg strength, and aerobic capacity every few years. No exercise program was given; they just watched what happened.

The group lived in the community, not in institutions. Staff helped with testing but did not coach fitness.

02

What they found

Every fitness measure got worse. Balance, strength, and VO2peak dropped by medium-to-large amounts. The losses sped up after age 35.

By year 12, most adults needed help with stairs or long walks.

03

How this fits with other research

Izquierdo-Gomez et al. (2015) saw the opposite in teens: vigorous play improved fitness. The difference is age. Teens can still gain; adults slide once they stop moving.

Alaimo et al. (2015) found adaptive living skills also shrink with age in Down syndrome. Boer (2024) shows the body follows the same downhill path.

Shire et al. (2022) gave the snapshot: adults with Down syndrome start adulthood already far behind peers. Boer (2024) now shows that gap keeps widening.

04

Why it matters

Waiting until you see weakness is too late. Start low-impact strength and balance drills in the twenties. Build habits before the slide begins. Use short, fun sessions with favorite music and a buddy—Van der Molen et al. (2010) showed that’s what keeps adults with Down syndrome coming back. Your program today can delay the steep drop this study predicts.

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Add five minutes of tandem walking and chair stands to the daily schedule, chart reps each session.

02At a glance

Intervention
not applicable
Design
pre post no control
Sample size
66
Population
down syndrome
Finding
negative
Magnitude
large

03Original abstract

BACKGROUND: Individuals with Down syndrome (DS) are born with and develop many health-related complications. The purpose of this study was to determine the longitudinal functional fitness profile of adults with DS. METHODS: The functional fitness of adults with DS was tested twice, 12 years apart. Sixty-six adults with DS were tested for body mass, stature and 10 functional fitness tests. Data were categorised according to gender and age-specific categories. RESULTS: Static balance, shoulder flexibility, trunk strength and aerobic capacity deteriorated significantly with medium to large effect sizes for both DS men and women (most age categories). For women, dynamic balance deteriorated significantly, and for men, leg- and upper body-strength deteriorated significantly. CONCLUSIONS: Practitioners working in the field of adapted physical activity should take cognisance of the functional fitness ageing profile of adults with DS and timeously develop habitual physical activity interventions to reduce the effect of accelerated ageing experienced by this population.

Journal of intellectual disability research : JIDR, 2024 · doi:10.1111/jir.13107