Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD).
Autism moms carry double the stress and depression, so every ABA program needs a built-in caregiver support plan.
01Research in Context
What this study did
Lai et al. (2015) asked 100 moms of kids with autism to fill out four short surveys. The surveys measured stress, depression, coping style, and well-being.
They compared the answers to a group of 100 moms of kids without disabilities. All kids were between 3 and 18 years old.
What they found
Moms of kids with autism scored twice as high on stress and depression. They also used more "active avoidance" coping, like pretending the problem will go away.
These moms rated their own well-being much lower than the comparison moms did.
How this fits with other research
Mammarella et al. (2022) extends this work by showing dads feel stress differently than moms. Wei’s paper only looked at moms, so adding fathers rounds out the picture.
Payne et al. (2020) found that parents who see their pets as helpful report less stress. This gives a simple, low-cost support to add alongside Wei’s call for caregiver help.
Alon (2019) showed that social support predicts personal growth in autism moms but not Down syndrome moms. This supports Wei’s plea for autism-specific support groups.
Why it matters
High stress and depression in parents can spill over into therapy sessions and home practice. Build a five-minute caregiver check-in at the start of each month. Ask about stress, share local parent-group contacts, and celebrate small wins. Lower parent stress means better follow-through on programs and more learning for the child.
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02At a glance
03Original abstract
This study examined psychological well-being and coping in parents of children with ASD and parents of typically developing children. 73 parents of children with ASD and 63 parents of typically developing children completed a survey. Parents of children with ASD reported significantly more parenting stress symptoms (i.e., negative parental self-views, lower satisfaction with parent-child bond, and experiences of difficult child behaviors), more depression symptoms, and more frequent use of Active Avoidance coping, than parents of typically developing children. Parents of children with ASD did not differ significantly in psychological well-being and coping when compared as according to child's diagnosis. Study results reinforced the importance of addressing well-being and coping needs of parents of children with ASD.
Journal of autism and developmental disorders, 2015 · doi:10.1007/s10803-015-2430-9