Autism & Developmental

Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis.

Gillberg et al. (2016) · Journal of autism and developmental disorders 2016
★ The Verdict

Almost every adult with childhood Asperger syndrome carries extra psychiatric diagnoses—so keep mental-health screening on the calendar forever.

✓ Read this if BCBAs who work with teens or adults diagnosed with Asperger syndrome or high-functioning ASD.
✗ Skip if Clinicians serving only infants or clients with profound autism and no verbal history.

01Research in Context

01

What this study did

Gillberg et al. (2016) tracked 50 men who got an Asperger diagnosis as kids. They checked each man’s full mental-health picture 20 years later. Doctors used charts, interviews, and records to list every new diagnosis that had shown up.

02

What they found

Ninety-four out of every 100 men now had at least one extra psychiatric or brain-based disorder. ADHD and depression were the most common partners to their autism. More than half still carried several conditions at the same time.

03

How this fits with other research

Andersen et al. (2023) followed autistic youth for 10 years and found that teen anxiety and depression shaped how good life felt at age 22. Their result gives a clue why Carina’s adults felt so burdened: mood trouble starts early and lingers.

Jänsch et al. (2014) tested the same adult-AS group and saw many jump to fast conclusions on a beads game. They also noted high depression scores, matching Carina’s count even though they never looked at full medical records.

Walsh et al. (2017) show a dark flip side: fewer than 1 in 10 autistic teens get a proper health-care transition plan. Carina’s 94 % comorbidity rate may partly stem from that gap—kids leave pediatric care and no one watches their mental health.

04

Why it matters

If you serve autistic clients, schedule wide mental-health check-ups at every age, not just at intake. Ask about attention, mood, and anxiety every year. Flag any change early and link to adult psychiatry before crises hit.

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→ Action — try this Monday

Add a yearly ‘mood, attention, and anxiety’ checklist to your adult ASD care plan and review results with a psychiatrist.

02At a glance

Intervention
not applicable
Design
case series
Sample size
50
Population
autism spectrum disorder
Finding
not reported

03Original abstract

We examined comorbid psychiatric and neurodevelopmental disorders in fifty adult males (mean age 30 years) with Asperger syndrome (AS) diagnosed in childhood and followed up prospectively for almost two decades (13-26 years). Only three of the 50 men had never met criteria for an additional psychiatric/neurodevelopmental diagnosis and more than half had ongoing comorbidity (most commonly either ADHD or depression or both). Any psychiatric comorbidity increased the risk of poorer outcome. The minority of the AS group who no longer met criteria for a full diagnosis of an autism spectrum disorder were usually free of current psychiatric comorbidity. The high rate of psychiatric/neurodevelopmental comorbidities underscores the need for a full psychiatric/neurodevelopmental assessment at follow-up of males with AS.

Journal of autism and developmental disorders, 2016 · doi:10.1007/s10803-015-2544-0