Autism & Developmental

Anxiety in high-functioning children with autism.

Gillott et al. (2001) · Autism : the international journal of research and practice 2001
★ The Verdict

Separation anxiety and obsessive-compulsive symptoms are the clearest red flags in high-functioning autistic students.

✓ Read this if BCBAs working with late-elementary students in public schools or clinics.
✗ Skip if Practitioners serving only non-verbal or adults with ASD.

01Research in Context

01

What this study did

Cullinan et al. (2001) compared anxiety levels in high-functioning children with autism to two control groups. They used standard anxiety checklists to see which symptoms stood out most.

The kids were in late elementary school. The study asked parents and teachers to rate worry, fear, and ritual behaviors.

02

What they found

Children with autism scored much higher on every anxiety scale. Separation anxiety and obsessive-compulsive symptoms were the biggest differences.

Social worries were also elevated. The gap was large enough to suggest anxiety is a core part of the autism profile, not just a side note.

03

How this fits with other research

Adams et al. (2020) extends this by letting kids speak for themselves. Their survey of 6- to 14-year-olds found 96% self-report anxiety, yet only half feel adults notice it at school or in the community.

Ambrose et al. (2022) links the same high anxiety to real-life limits. They show higher parent-rated anxiety predicts fewer home and community activities, even after autism severity is held constant.

Capio et al. (2013) adds a twist: among school-age autistic students, those with milder autism traits and poorer social ties show the highest anxiety. IQ had no effect, confirming the 2001 pattern is about social connection, not smarts.

04

Why it matters

Screen every high-functioning autistic student for separation anxiety and obsessive rituals. These two areas pop up first and strongest. Use the data to write goals that target worry, not just social skills. When anxiety drops, kids join more activities and adults actually notice the change.

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Add two quick anxiety items to your intake form: 'Child upset when apart from caregiver' and 'Child repeats actions or words many times.'

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
45
Population
autism spectrum disorder
Finding
negative

03Original abstract

High-functioning children with autism were compared with two control groups on measures of anxiety and social worries. Comparison control groups consisted of children with specific language impairment (SLI) and normally developing children. Each group consisted of 15 children between the ages of 8 and 12 years and were matched for age and gender. Children with autism were found to be most anxious on both measures. High anxiety subscale scores for the autism group were separation anxiety and obsessive-compulsive disorder. These findings are discussed within the context of theories of autism and anxiety in the general population of children. Suggestions for future research are made.

Autism : the international journal of research and practice, 2001 · doi:10.1177/1362361301005003005