Adult outcomes in autism: community inclusion and living skills.
Most autistic adults—high IQ or not—lack daily living skills, so teach those skills now.
01Research in Context
What this study did
M et al. tracked the adults who had been diagnosed with autism as kids. They asked how well these adults now shop, cook, ride the bus, and join clubs. They also looked at old IQ scores to see if smarts predicted life skills.
What they found
Most adults lived with parents and needed help every day. Even people with average or high IQs often could not pay bills or ride alone. Childhood IQ helped a little, but it did not guarantee independence.
How this fits with other research
van Schrojenstein Lantman-de Valk et al. (2006) saw the same group struggle: young adults with autism plus ID showed the worst behavior and the most mom stress. The two studies line up—poor skills go hand-in-hand with tough behavior.
Prigge et al. (2013) add a twist. They found adults who echoed speech most during tests also had the lowest daily-living scores. This supports M’s point: language control and real-life skills sink together.
Klein et al. (2024) just updated the ICF Core Sets for autism. They added sensory items and age bands. Use their new checklist while you target the very gaps M et al. revealed.
Why it matters
Stop waiting for “high-functioning” kids to catch up. Start teaching laundry, money, and bus routes early, no matter the IQ. Write goals for each adaptive domain and probe them yearly. M et al. show that without this work, even bright adults stay stuck at home.
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02At a glance
03Original abstract
Longitudinal research has demonstrated that social outcomes for adults with autism are restricted, particularly in terms of employment and living arrangements. However, understanding of individual and environmental factors that influence these outcomes is far from complete. This longitudinal study followed a community sample of children and adolescents with autism into adulthood. Social outcomes in relation to community inclusion and living skills were examined, including the predictive role of a range of individual factors and the environment (socio-economic disadvantage). Overall, the degree of community inclusion and living skills was restricted for the majority, and while childhood IQ was an important determinant of these outcomes, it was not the sole predictor. The implications of these findings in relation to interventions are discussed.
Journal of autism and developmental disorders, 2014 · doi:10.1007/s10803-014-2159-x