What is the Prevalence of Self-harming and Suicidal Behaviour in Under 18s with ASD, With or Without an Intellectual Disability?
Self-harm and suicide risk are higher in autistic youth, but the red flags vary, so screen with both general tools and autism-tuned predictors.
01Research in Context
What this study did
Payne et al. (2020) looked at every paper they could find on self-harm and suicide in autistic youth under 18. They also included kids who had both autism and intellectual disability.
The team used a systematic review design. They pooled results to see how common these behaviors are compared to typical peers.
What they found
Rates of self-harm and suicidal acts were higher than in the general population, but the numbers jumped around a lot from study to study.
No single clear prevalence emerged; the review simply confirmed the risk is elevated.
How this fits with other research
Anthony et al. (2020) asked the next logical question: what tools do we use to catch this risk? They found none are designed for autistic youth, while five exist for typical kids. Together the two 2020 reviews paint a full picture: risk is up, yet our screens are missing.
Arwert et al. (2020) dug deeper into the same pool of kids. They showed suicide talk and self-harm have different warning signs—age, repetitive behaviors, IQ, and daily-living skills matter in distinct ways. Their work extends K et al. by telling you what to watch, not just that danger looms.
Early et al. (2012) had earlier reported that half of people with autism plus intellectual disability showed self-injury. K et al. confirm the broad trend with tighter methods, acting as a 2020 update to that older survey snapshot.
Why it matters
You now know autistic clients under 18 are more likely to self-harm or think about suicide, but the signs differ. Add quick probes for irritability, adaptive skills, and repetitive behaviors to your intake. Until autism-specific tools arrive, borrow items from the five general tools J et al. list, and pair them with the predictor list from G et al. to catch who needs help first.
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02At a glance
03Original abstract
A systematic literature review was undertaken to ascertain the prevalence of self-harm and suicidal behaviour in children and young people under 18 years old with a diagnosis of autism spectrum disorder (ASD), with or without an intellectual disability. There was variation in the reported prevalence rates but results suggested that rates of both self-harm and suicidal behaviour may be elevated in ASD compared to the general population. This is in keeping with literature relating to autistic adults but in contrast to conclusions of a previous systematic review. This review highlights the need for further research to explore the experience of self-harm and suicidal behaviour in autistic children and young people.
Journal of autism and developmental disorders, 2020 · doi:10.1007/s10803-020-04422-6