Using interpretative phenomenological analysis in autism research.
Use interpretative phenomenological analysis to keep autistic voices louder than researcher assumptions.
01Research in Context
What this study did
Howard et al. (2019) wrote a how-to paper. They explain a way to interview autistic people called interpretative phenomenological analysis, or IPA.
IPA treats each person as the expert on their own life. The researcher keeps a diary of their own thoughts so their bias does not drown out the speaker.
What they found
The paper does not give new data. It argues that IPA lets autistic voices be heard first and loudest in research.
Because IPA studies only a few people at a time, it shows the texture of living with autism instead of just group averages.
How this fits with other research
Tager-Flusberg (2004) said the same thing fifteen years earlier: stop forcing autistic people into boxes built for neurotypical controls. Howard et al. (2019) pick up that torch and hand researchers a lighter called IPA.
Mejía-Buenaño (2025) takes the idea into ABA clinics. They tell BCBAs to add open-ended questions or client journals to standard tests. The 2025 piece is the practical child of the 2019 theory.
Rabba et al. (2025) show why adult diagnosis feels broken—tools ignore self-report. IPA gives a ready-made way to fix that gap by letting adults tell their own story.
Why it matters
You can borrow IPA tomorrow. Add one reflective question to your intake: “What matters most to you about coming here?” Write down your own reactions before you score the data. That small step keeps the client’s voice on center stage and may reveal goals your checklist never asked about.
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02At a glance
03Original abstract
Qualitative studies within autism research are gaining prominence, yet there is little evidence about the usefulness of particular qualitative approaches in reflecting the perspectives and experiences of autistic participants. This short report serves to introduce interpretative phenomenological analysis as one among a range of qualitative approaches to autism research. We argue that certain features of interpretative phenomenological analysis, including its commitment to an equality of voice and researcher reflexivity, may help to illuminate the experiences of autistic individuals. The procedures of interpretative phenomenological analysis are presented through the lens of 10 studies into autistic people's experiences, and a case is made for the suitability of this approach within qualitative autism research.
Autism : the international journal of research and practice, 2019 · doi:10.1177/1362361318823902