Trajectories of autism severity in early childhood.
Autism severity paths are mostly set by age three, so use the first ADOS score to plan long-term dose and targets.
01Research in Context
What this study did
The team tracked the toddlers who got an autism diagnosis before age three. They gave each child the ADOS every 9-12 months until age five and a half.
They used the ADOS Calibrated Severity Score to sort kids into groups that shared the same growth pattern.
What they found
Four clear paths showed up. About half the kids stayed in the moderate range. One third stayed high. Small groups either slid from high to moderate or climbed from moderate to low.
Kids who stayed severe had the lowest IQ and daily-living scores at the start.
How this fits with other research
Giserman-Kiss et al. (2020) ran a similar study with more diverse families and found the same thing: a large share kept the diagnosis and most stayed in the same severity band.
Jónsdóttir et al. (2007) used an older rating scale and saw symptoms drop a little over the preschool years. The new ADOS scores are more precise, so the 2014 results refine the older picture rather than clash with it.
Fujiura et al. (2018) followed the same kids longer and found that daily-living scores stop climbing in the teen years. Together, the papers say: severity paths lock in early, but skill teaching must keep going.
Why it matters
You can tell families that autism severity at age three is a strong hint of where a child will stay. Use the first ADOS score to plan intensity: kids who start severe need more hours up front. Re-check yearly, but do not expect big jumps. Shift goals to daily-living and communication skills early, because gains slow down later.
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02At a glance
03Original abstract
Relatively little is known about trajectories of autism severity using calibrated severity scores (CSS) from the Autism Diagnostic Observation Schedule, but characterizing these trajectories has important theoretical and clinical implications. This study examined CSS trajectories during early childhood. Participants were 129 children with autism spectrum disorder evaluated annually from ages 2½ to 5½. The four severity trajectory classes that emerged--Persistent High (n = 47), Persistent Moderate (n = 54), Worsening (n = 10), and Improving (n = 18)-were strikingly similar to those identified by Gotham et al. (Pediatrics 130(5):e1278-e1284, 2012). Children in the Persistent High trajectory class had the most severe functional skill deficits in baseline nonverbal cognition and daily living skills and in receptive and expressive language growth.
Journal of autism and developmental disorders, 2014 · doi:10.1007/s10803-013-1903-y