Toward assessing family outcomes of service delivery: validation of a family quality of life survey.
A new 41-item Family Quality of Life survey is ready to track how services help the whole family, not just the client.
01Research in Context
What this study did
The team built a new survey that asks families how services help their whole family.
They wrote 41 questions that cover five areas: family life, money, health, safety, and support.
Over 1,000 parents and caregivers filled out the draft so the researchers could check if the questions hang together.
What they found
The math showed the five groups of questions really do stick together.
The final 41-item Family Quality of Life survey is ready for agencies to see if services actually make family life better.
How this fits with other research
Hu et al. (2012) later gave the same five-factor survey to 442 Chinese families and got the same pattern. This tells us the tool works across cultures, so you can compare results from different families on your caseload.
Hsieh et al. (2014) ran a similar check on a shorter Family Outcomes Survey in Singapore. Both studies used factor analysis and found the same story: brief family scales can reliably track service impact.
Lin et al. (2009) looked at caregiver stress with a different tool and found low quality of life. Their data line up with the new survey’s focus on support and health, giving you two lenses—family-level and caregiver-level—to spot trouble.
Why it matters
You now have a free, 41-question yardstick that measures what really matters to families. Use it at intake and every six months to see if your parent training, respite, or behavioral plans actually make home life easier. If scores climb, keep doing what you’re doing; if they stall, you have numbers to justify adding housing, finance, or counseling supports.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Hand the Family Quality of Life survey to your next intake family and pick one low-scoring domain to target first.
02At a glance
03Original abstract
BACKGROUND: The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL. METHODS AND RESULTS: A total of 1197 respondents participated in a national field test. Through factor analysis, the survey was refined in several ways: (1) the preliminary 10-domain structure was reduced to a five-domain structure; (2) a total of 41 items were selected for the revised survey; and (3) wordings were clarified. CONCLUSIONS: The implications for future research and practice are discussed.
Journal of intellectual disability research : JIDR, 2003 · doi:10.1046/j.1365-2788.2003.00497.x