Assessment & Research

Quality of life for people with intellectual disabilities in China: a cross-culture perspectives study.

Xu et al. (2005) · Journal of intellectual disability research : JIDR 2005
★ The Verdict

Use the seven Chinese QOL factors to ensure your supports for adults with ID respect cultural values like family harmony.

✓ Read this if BCBAs serving Chinese adults with intellectual disability in day or residential programs.
✗ Skip if Clinicians who only work with young children or non-Chinese families.

01Research in Context

01

What this study did

The team asked adults with intellectual disability in China how they feel about life.

They used a survey to find the main parts that make up quality of life in that culture.

The goal was to build a tool that fits Chinese values such as family harmony.

02

What they found

Seven clear factors came out: things like family, health, and safety.

These factors line up with world-wide QOL ideas, yet keep a Chinese flavor.

The model gives clinicians a map to check what matters most to clients.

03

How this fits with other research

Hu et al. (2012) later used a similar factor method on Chinese families and found five family QOL parts. Their work extends this 2005 adult focus to the whole household.

Hagopian et al. (2005) in the U.S. also found multi-factor QOL, but U.S. adults rated intimacy lower while Chinese adults put family first. The two studies look opposite until you see culture drives the weight of each domain.

Lecavalier et al. (2006) built a staff-rated tool in Italy. Both papers give BCBAs valid choices: ask the person (China model) or ask staff (Italy model) depending on client verbal level.

04

Why it matters

You now have a culture-smart checklist for Chinese adults with ID. Ask about family, health, money, and safety first. When these line up, clients report higher life satisfaction. Use the seven factors to pick support goals that feel right at home.

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Add one question about family harmony to your intake interview and note if it is satisfied or needs a goal.

02At a glance

Intervention
not applicable
Design
survey
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: The concept of quality of life (QOL) is explained on the basis of traditional Chinese culture and contemporary social and cultural trends. METHOD: The importance of internationally recognized QOL domains and indicators was determined for three respondent groups: consumers, parents of the consumers, and teachers and rehabilitation professionals working with the clients. RESULTS: Principal component analysis confirmed seven factors influencing QOL for people with intellectual disabilities (ID) in China. These seven components are conceptually equivalent to the eight domains found in the international QOL literature. CONCLUSION: The concept of QOL has become one of the most sensitive issues in present Chinese society and peoples' lives, and an important theoretical framework for the education and rehabilitation for people with ID in several ways: curriculum development, service delivery models, education and rehabilitation practices, and employment models.

Journal of intellectual disability research : JIDR, 2005 · doi:10.1111/j.1365-2788.2005.00744.x