Assessment & Research

The relationship between challenging behaviour and anxiety in adults with intellectual disabilities: a literature review.

Pruijssers et al. (2014) · Journal of intellectual disability research : JIDR 2014
★ The Verdict

Undiagnosed anxiety often drives challenging behavior in adults with ID, so screen first and treat second.

✓ Read this if BCBAs serving adults with ID in residential or day programs.
✗ Skip if Clinicians who work only with young children or typically developing clients.

01Research in Context

01

What this study did

The authors read every paper published between 2000 and 2012 that looked at anxiety and challenging behavior in adults with intellectual disability.

They found only seven studies, so they wrote a narrative review instead of a meta-analysis.

All studies used caregiver reports or clinical interviews; none used physiological measures like heart rate.

02

What they found

Every study showed a moderate link: when anxiety goes up, so does challenging behavior.

Yet the link is messy. Some behaviors look like anxiety but are not labeled that way.

Because anxiety is rarely screened, many adults stay undiagnosed and behaviors are blamed on the disability itself.

03

How this fits with other research

Haishi et al. (2013) extends this picture by showing that cognitive slowing starts around age 30 in severe ID. Together the papers warn: as adults age, both hidden anxiety and hidden brain changes can spark behaviors that look "new" but have medical roots.

Finlayson et al. (2025) and Bouck et al. (2016) echo the same gap. Janet’s team found high rates of untreated incontinence, while C et al. showed lower quality of life; both argue that health problems stay invisible unless you actively screen.

Eggleston et al. (2018) carries the timeline further: once these adults reach 50, having four or more health conditions doubles mortality risk. The 2014 review’s call to screen for anxiety therefore feeds straight into the later life-or-death numbers seen in D et al.

04

Why it matters

If you support adults with ID, add a quick anxiety screen to your intake. Use the Glasgow Anxiety Scale or simply ask caregivers about new fears, sleep loss, or avoidance. Treating anxiety can cut challenging behavior before you write a behavior plan.

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Add two anxiety questions to your caregiver interview: "Has the person become more worried or avoidant in the last month?" and "Any new fears or sleep problems?" If yes, refer for mental-health evaluation before you start behavioral treatment.

02At a glance

Intervention
not applicable
Design
narrative review
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: Anxiety and challenging behaviour (CB) often occur simultaneously in people with intellectual disabilities (ID). Understanding the associations between anxiety and CB may contribute to more accurate diagnoses and management of both anxiety and CB in this population. AIMS: To examine the relationship between anxiety and CB. METHODS: A literature review covering the period from January 2000 to January 2012. RESULTS: Seven studies about the relationship between psychiatric disorders, including anxiety, and CB were identified. These studies confirm the relationship between anxiety and CB in people with ID, although the precise nature of this relationship remains unclear. CONCLUSIONS: The study points toward the existence of a moderate association between anxiety and CB. Further research is needed to clarify the complex nature of the association between anxiety and CB.

Journal of intellectual disability research : JIDR, 2014 · doi:10.1111/jir.12012