The Family Stress and Coping Interview for families of individuals with developmental disabilities: a lifespan perspective on family adjustment.
The FSCI is a solid, ready-to-use interview that turns caregiver stress into numbers you can track.
01Research in Context
What this study did
The team built a new interview called the FSCI. It asks caregivers about stress and coping.
They checked if the questions give steady answers and truly measure family stress.
Participants were families who care for someone with a developmental disability.
What they found
The interview held up. It gave reliable scores and showed it really tracks caregiver stress.
That means you can trust the numbers when you use it in practice.
How this fits with other research
Bhaumik et al. (2009) later used a sister tool, the FQOL Survey. It flips the lens from stress to quality of life. Together the two tools give a full picture: one spots pain, the other finds strengths.
Rivard et al. (2017) took the quality-of-life idea and made it work in French for preschoolers with ASD. The FSCI still stands as the go-to if you want to measure stress, while the French FQOL helps when language or age changes.
Li et al. (2024) built a fresh scale for parent advocacy. Their work keeps the FSCI useful for stress, but now you can also score how much parents fight for services. Use both when you want stress level plus action level.
Why it matters
You now have a quick, free interview that turns caregiver stress into data. Run it at intake, after six months of service, or when a big change hits. Pair it with a quality-of-life or advocacy scale to see both pain and power. The numbers guide where to put respite, training, or emotional support first.
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02At a glance
03Original abstract
BACKGROUND: The present study investigated the psychometric properties of the Family Stress and Coping Interview (FSCI), a questionnaire designed to quantitatively and qualitatively examine the experiences of parents of children with developmental disabilities (DDs). METHODS: The participants consisted of 106 primary caregivers of 106 individuals with DDs from centres in Eastern, Central and North-western Ontario, Canada. The participants completed a demographic questionnaire, the FSCI, and the Vineland Adaptive Behaviour Scales. RESULTS: The results of this study indicate that the FSCI has adequate reliability (i.e. internal consistency and long-term stability) and validity (i.e. independent item ratings and discriminant validity). CONCLUSIONS: The results of this study support the use of the FSCI as a measure of family stress in research and practice.
Journal of intellectual disability research : JIDR, 2003 · doi:10.1046/j.1365-2788.2003.00490.x