"Teaches People That I'm More Than a Disability": Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities.
Nominal Group Technique hands the mic to adults with IDD and turns their ranked ideas into ready-to-use healthcare fixes.
01Research in Context
What this study did
van Timmeren et al. (2016) ran a small group meeting with ten adults who have intellectual or developmental disabilities. The team used Nominal Group Technique, a step-by-step way to collect ideas and vote on the best ones.
The goal was to let the adults co-design new healthcare tools. Each person wrote ideas, shared them aloud, and then ranked the most important changes they wanted.
What they found
Every adult took part. The process gave clear, usable feedback that staff could turn into real healthcare resources.
Participants said the method showed others they are "more than a disability." They felt heard and valued.
How this fits with other research
Richman (2008) used Photovoice, another discussion method, and also found that adults with IDD can be active partners, not just subjects. Both studies show talking-based tools work when people are given real power.
Heras et al. (2021) used a Delphi method with teachers to build a quality-of-life tool for students. Like A et al., they mixed expert and user voices to shape final items. The adult focus in A et al. extends the idea to healthcare.
McDonald (2012) asked adults what respectful research feels like. Their top answer matches A et al.’s outcome: treat us as teammates. Together, the papers say structure plus respect equals meaningful input.
Why it matters
You can add Nominal Group Technique to your next stakeholder meeting. Give clients sticky notes, let them vote, and watch usable ideas surface in under an hour. The method needs no tech and works in day-hab, clinic, or plan-of-care nights. When people with IDD shape their own tools, buy-in and dignity both rise.
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02At a glance
03Original abstract
Individuals with intellectual and developmental disabilities (IDD) have complex healthcare needs, which are often unmet. Nominal group technique (NGT) uses a mixed-methods approach, which may engage the IDD population in the research process in a person-centered manner and address the shortcomings of traditional research methods with this population. NGT was used with a group of 10 self-advocates to evaluate a series of healthcare tools created by and for individuals with IDD. Participants provided helpful input about the strengths of these tools and suggestions to improve them. NGT was found to be an effective way to engage all participants in the research process.
Intellectual and developmental disabilities, 2016 · doi:10.1352/1934-9556-54.2.112