Substance use disorders in individuals with mild to borderline intellectual disability: current status and future directions.
We still lack validated drug-and-alcohol screens and treatments for adults with mild-borderline ID—start using simple questionnaires and push for ID-adapted services.
01Research in Context
What this study did
van Duijvenbode et al. (2015) looked at every paper they could find on drug and alcohol problems in adults with mild or borderline intellectual disability. They wanted to know how common these problems are and what tools we use to spot them.
They found big gaps. No one agrees on how many people are affected. Most addiction screens use words too hard for this group. Few studies test what helps.
What they found
The review says we are flying blind. We do not have a clear count of how many adults with mild ID also have a substance use disorder.
The few tools we do have are not made for people who learn best with pictures and simple language. Treatment programs rarely adjust for slower processing or caregiver roles.
How this fits with other research
Bassett-Gunter et al. (2017) picked up the challenge. They showed that short questionnaires given to both the person and a staff member catch current drug use just as well as urine or hair tests. This gives you a cheap, ID-friendly screen.
Luteijn et al. (2020) went further. They hunted for studies that treat both trauma symptoms and addiction in the same person with mild ID. They found zero. Their message: we need to build these combo treatments now.
Slayter (2010) adds a system view. Medicaid data show that people with ID get addiction care at much lower rates than others. The gap is not just tools; it is doors that stay closed.
Why it matters
If you work with adults who have mild or borderline ID, start by adding the simple self- and staff-report screens from Bassett-Gunter et al. (2017) to your intake packet. When you see risk, push for a referral and ask the provider to use pictures, plain words, and caregiver help. Track how often you hit closed doors; share that data with your agency to advocate for better access. Small steps now build the chronic-care system Neomi et al. say we need.
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02At a glance
03Original abstract
Knowledge regarding substance use (SU) and substance use disorder (SUD) in individuals with mild to borderline intellectual disabilities (ID) has increased over the last decade, but is still limited. Data on prevalence and risk factors are fragmented, and instruments for screening and assessment and effective treatment interventions are scarce. Also, scientific developments in other fields are insufficiently incorporated in the care for individuals with ID and SUD. In this selective and critical review, we provide an overview of the current status of SU(D) in ID and explore insights on the conceptualisation of SUD from other fields such as addiction medicine and general psychiatry. SU(D) turns out to be a chronic, multifaceted brain disease that is intertwined with other physical, psychiatric and social problems. These insights have implications for practices, policies and future research with regard to the prevalence, screening, assessment and treatment of SUD. We will therefore conclude with recommendations for future research and policy and practice, which may provide a step forward in the care for individuals with ID and SUD.
Research in developmental disabilities, 2015 · doi:10.1016/j.ridd.2014.12.029