Should the DSM V drop Asperger syndrome?
The fight to keep Asperger syndrome failed, yet the paper shows why clients may still use the word.
01Research in Context
What this study did
Ghaziuddin (2010) wrote a position paper. He argued that DSM-V should keep Asperger syndrome as a separate label. He offered new wording to fix the criteria instead of deleting the name.
The paper is theoretical. It does not test kids or run trials. It talks about why the label still helps clinicians and families.
What they found
The author found that dropping the label could erase useful history. He says the name guides treatment and self-identity. He offers tweaked rules so the diagnosis can stay.
How this fits with other research
Finucane et al. (2023) looks like a contradiction but is not. They defend the DSM-5 term "autism spectrum disorder" after Asperger was removed. The 2023 letter accepts the change; Ghaziuddin (2010) fought it. The field simply moved on.
Tassé et al. (2013) and Luckasson et al. (2013) do the same dance for intellectual disability. They ask ICD-11 to drop "mental retardation" and adopt new wording. All three papers push for cleaner labels, but only Mohammad tries to save the old one.
Wolfensberger (2011) adds a twist. He warns that forcing "people-first" talk can backfire. His point supports Mohammad: sudden language swaps can confuse clinicians and families.
Why it matters
You still hear parents say "Asperger's" even though DSM-5 deleted it. Knowing the back-story helps you explain why the term vanished and why some clients cling to it. Use the current DSM-5 codes in reports, but respect the client’s preferred language during conversation.
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02At a glance
03Original abstract
The DSM IV defines Asperger syndrome (AS) as a pervasive developmental (autistic spectrum) disorder characterized by social deficits and rigid focused interests in the absence of language impairment and cognitive delay. Since its inclusion in the DSM-IV, there has been a dramatic increase in its recognition both in children and adults. However, because studies have generally failed to demonstrate a clear distinction between AS and autism, some researchers have called for its elimination from the forthcoming DSM V. This report argues for a modification of its diagnostic criteria and its continued retention in the diagnostic manual.
Journal of autism and developmental disorders, 2010 · doi:10.1007/s10803-010-0969-z