Assessment & Research

Scaling methods to measure psychopathology in persons with intellectual disabilities.

Matson et al. (2012) · Research in developmental disabilities 2012
★ The Verdict

A growing set of standardized scales now exists to help BCBAs and clinicians accurately diagnose emotional disorders in clients with intellectual disabilities.

✓ Read this if BCBAs who assess or write mental-health goals for tweens, teens, or adults with ID.
✗ Skip if Practitioners who only serve clients with ASD and no ID.

01Research in Context

01

What this study did

The authors read every paper they could find on scales that measure mental-health problems in people with intellectual disability.

They grouped the tools by what they claim to measure: mood, anxiety, psychosis, or general distress.

No new data were collected; the paper is a roadmap of what already exists.

02

What they found

Dozens of rating forms now exist, but many were built for the general public and later tweaked for ID.

Few scales have strong ID norms, so scores can be hard to interpret.

03

How this fits with other research

Thurm et al. (2020) later warned that classic IQ and adaptive tests may miss real change in new ID treatments; together the two reviews tell you to pick outcome tools carefully.

van Timmeren et al. (2016) ran statistics on adult ID data and showed that dimensional symptom models predict problems better than classic diagnoses, giving you a reason to favor newer dimensional scales listed in L et al.

Mercier et al. (2025) shifted focus from psychopathology to emotional well-being and found most “well-being” tools are really quality-of-life scales with only one or two mood items—check both reviews so you do not confuse the constructs.

04

Why it matters

You now have a shopping list of mood and anxiety scales made for clients with ID. Before you write a mental-health goal, flip to this review to see which tool has the best norm group for your client’s age and verbal level. If the scale was adapted from the general population, plan extra training for caregivers so they know how to score ID-specific items.

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Open the review’s table, pick one mood scale that matches your client’s communication level, and add it to the next assessment plan.

02At a glance

Intervention
not applicable
Design
narrative review
Population
intellectual disability
Finding
not reported

03Original abstract

Psychopathology prior to the last four decades was generally viewed as a set of problems and disorders that did not occur in persons with intellectual disabilities (ID). That notion now seems very antiquated. In no small part, a revolutionary development of scales worldwide has occurred for the assessment of emotional problems in persons with ID. The first standardized test to emerge was the Psychopathology Instrument for Mentally Retarded Adults (PIMRA) in 1984. Since that time, an impressive number of measures of general psychopathology have emerged for adults and children as well as for persons across the full range of levels of ID. The purpose of this review was to provide a description of available measures, to review papers published on these measures, and to discuss emerging trends in test development. The trends in this body of information for enhancing differential diagnosis of psychopathology in persons with ID are discussed.

Research in developmental disabilities, 2012 · doi:10.1016/j.ridd.2011.10.023