Assessment & Research

Prevalence of chronic health conditions in children with intellectual disability: a systematic literature review.

Oeseburg et al. (2011) · Intellectual and developmental disabilities 2011
★ The Verdict

Expect epilepsy, cerebral palsy, and anxiety in about one in five kids with ID—plan assessments and referrals accordingly.

✓ Read this if BCBAs who assess or treat school-age children with intellectual disability.
✗ Skip if Clinicians working only with typically developing clients or adults with ID.

01Research in Context

01

What this study did

Oeseburg et al. (2011) looked at every paper they could find on long-term health problems in kids with intellectual disability. They did not run new tests. They read and pooled the old ones. The team wanted to know which extra health issues show up most often.

02

What they found

Three problems stood out. About one in five kids had epilepsy. One in five had cerebral palsy. One in five had an anxiety disorder. Rates were much higher than in typical children.

03

How this fits with other research

Dai et al. (2023) later asked, "If anxiety is so common, does CBT help?" Their review of nine small trials said yes, but only when you add pictures, model steps, and keep groups tiny.

Nuebling et al. (2024) added another layer. They found sleep problems are also the norm, not the exception, in people with ID. So the chronic-condition list keeps growing.

La Valle et al. (2025) counted real-world meds. Adults with ID now average eight over-the-counter drugs each. The 2011 picture of high health burden still holds—and looks worse with newer data.

04

Why it matters

When you see a child with ID, expect more than cognitive delay. Screen for epilepsy, cerebral palsy, anxiety, and sleep issues at intake. Build these checks into your baseline assessment. If anxiety shows up, try CBT with visuals and small groups. Track side effects when families list multiple OTC meds. Planning for extra health needs lets you write realistic goals and avoid surprises during sessions.

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Add a quick health checklist for epilepsy, cerebral palsy, anxiety, and sleep to your intake forms.

02At a glance

Intervention
not applicable
Design
systematic review
Population
intellectual disability
Finding
not reported

03Original abstract

A systematic review of the prevalence rates of chronic health conditions in populations of children with intellectual disability was provided. We identified 2,994 relevant studies by searching Medline, Cinahl, and PsycINFO databases from 1996 to 2008. We included the 31 studies that had sufficient methodological quality. The 6 most prevalent chronic health conditions in children with intellectual disability were epilepsy (22.0/100), cerebral palsy (19.8/100), any anxiety disorder (17.1/100), oppositional defiant disorder (12.4/100), Down syndrome (11.0/100), and autistic disorder (10.1/100). The reported prevalence rates of chronic health conditions in this population was much higher than in the general population. However, both the number of studies that were included and the number of chronic health conditions they reported about were limited. There is an urgent need for better evidence on the prevalence of chronic health conditions among children with intellectual disability.

Intellectual and developmental disabilities, 2011 · doi:10.1352/1934-9556-49.2.59