Assessment & Research

Prevalence of Autism Spectrum Disorders Among Children With Intellectual Disability.

Tonnsen et al. (2016) · American journal on intellectual and developmental disabilities 2016
★ The Verdict

One in five kids with ID also has autism, so screen carefully and plan for more intense support needs.

✓ Read this if BCBAs doing intake or reassessment for children with intellectual disability in schools or clinics.
✗ Skip if Practitioners who only serve adults or clients without developmental delays.

01Research in Context

01

What this study did

Tonnsen et al. (2016) counted how many children with intellectual disability also meet autism criteria. They looked at records for over 2,000 kids in South Carolina who already had an ID label.

The team used standard autism screeners and diagnostic rules. They wanted to know the overlap rate and whether the kids with both labels looked different from kids with autism only.

02

What they found

Eighteen out of every 100 children with ID also had autism. That is almost one in five.

These kids showed more severe social and behavior problems than peers who had autism without ID. Expect a more complex profile when the two labels occur together.

03

How this fits with other research

Tsakanikos et al. (2006) and Porter et al. (2008) asked the same question in adults. They found no extra mental-health risk once ability level was held constant. The adult data extend the child count across the lifespan and calm fears that autism plus ID always means more psychiatric illness.

Ratcliffe et al. (2015) zoomed in on school-age kids. They showed that poor social skills, common in the ASD-plus-ID group, strongly predict later mental-health problems. Together the studies say: watch social skills, but do not assume extra psychiatric disease is inevitable.

Jin et al. (2018) ran a similar head-count in Shanghai. Most children they caught had very low IQ, echoing the severe profile seen in L et al. The two papers give clinicians worldwide benchmarks: expect roughly one-fifth of kids with ID to also meet ASD rules, and plan for greater symptom intensity.

04

Why it matters

When you assess a child already labeled with ID, keep autism on your checklist. One in five will meet criteria, and they will likely need stronger supports for language, social, and behavior goals. Build social-skills teaching into the plan, track progress closely, and share the adult-study comfort with families: having both labels does not doom the person to extra mental-health trouble.

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Pull your current ID caseload, add an autism screener to any file without it, and note which kids may need heavier social-skills programming.

02At a glance

Intervention
not applicable
Design
other
Sample size
2208
Population
autism spectrum disorder, intellectual disability
Finding
not reported

03Original abstract

Autism spectrum disorders (ASD) often co-occur with intellectual disability (ID) and are associated with poorer psychosocial and family-related outcomes than ID alone. The present study examined the prevalence, stability, and characteristics of ASD estimates in 2,208 children with ASD and ID identified through the South Carolina Autism and Developmental Disabilities Network. The prevalence of ASD in ID was 18.04%, relative to ASD rates of 0.60%-1.11% reported in the general South Carolina population. Compared to children with ASD alone, those with comorbid ID exhibited increased symptom severity and distinct DSM-IV-TR profiles. Further work is needed to determine whether current screening, diagnostic, and treatment practices adequately address the unique needs of children and families affected by comorbid ASD and ID diagnoses.

American journal on intellectual and developmental disabilities, 2016 · doi:10.1352/1944-7558-121.6.487