Assessment & Research

Photovoice as participatory action research tool for engaging people with intellectual disabilities in research and program development.

Jurkowski (2008) · Intellectual and developmental disabilities 2008
★ The Verdict

Photovoice turns adults with ID into co-researchers by letting them photograph and explain their own experiences.

✓ Read this if BCBAs who run adult day programs or want richer self-report data from clients with limited verbal skills.
✗ Skip if Clinicians looking for a behavior-reduction protocol or strict experimental design.

01Research in Context

01

What this study did

The author reviewed how Photovoice works with adults who have intellectual disabilities. Photovoice gives people cameras so they can take pictures of their daily lives and then talk about them in groups.

The review also walked through one real project where adults with ID used Photovoice to help plan a new day program.

02

What they found

Adults with ID could handle cameras and pick photos that showed what mattered to them. Group talks about the pictures helped staff see barriers the adults faced every day.

The method had bumps too: some people needed extra time to learn the camera, and staff had to guard against taking over the discussion.

03

How this fits with other research

Waller et al. (2010) also adapted an assessment tool for ID adults, showing the field keeps tweaking methods so this population can take part. Both papers share the same goal: make research tools fit the user.

Green et al. (2020) asked residents and families what organizational factors spark challenging behavior. Like Photovoice, that study puts stakeholder voices first instead of relying only on staff reports.

Ahrens et al. (2011) went a step further: a peer with ID actually taught mindfulness to three friends and cut their aggression to near-zero. Photovoice gives people a camera; N’s study gave them the teacher role—both expand what clients can do beyond answering questions.

04

Why it matters

If you run social-skills groups or quality-of-life surveys, try adding a Photovoice week. Hand out simple point-and-shoot cameras or tablets, let clients photograph “what helps me” and “what blocks me,” then hold a picture-talk session. You will gather rich personal data that standard interviews often miss, and your clients get to be co-researchers instead of subjects.

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Give one client a durable camera for the day, ask them to snap five pictures of things they like or dislike, and start next session by reviewing the photos together.

02At a glance

Intervention
not applicable
Design
narrative review
Population
intellectual disability
Finding
not reported

03Original abstract

People with intellectual disabilities have few opportunities to actively participate in research affecting programs and policies. Employment of participatory action research has been recommended. Although use of this approach with people who have intellectual disabilities is growing, articles on specific participatory research methods are rare. Photovoice is a participatory method often used with underrepresented groups and is effective for engaging people with intellectual disabilities in research or program development. A literature review is presented for use with this population as is a description of Photovoice as a participatory research tool for engaging people with intellectual disabilities. An example of a participatory study among people with intellectual disabilities is provided. Benefits and challenges of employing Photovoice with this population are discussed.

Intellectual and developmental disabilities, 2008 · doi:10.1352/0047-6765(2008)46[1:PAPART]2.0.CO;2